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Liver transplant - Let's support each other

Transplants | Last Active: 5 days ago | Replies (1606)

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@techi

@rosemarya Happy New Year Rosemary. I know you haven't heard from me in awhile. I have so many new doctors it crazy. Since l last talked to you l had my appendix removed and l was in the hospital twice. I just came out on the 27th. Missed Christmas with the family but l can't complain l still alive. I was on the xifaxan again because Dr Poterucha told me to get back on it. I did and when l called in for a refill l was having symptoms because l was waiting for the refill and the doctor rushed and put me in the psych ward. So now l am back on my medication. I been to a new neurologist and l really don't think he saw anything wrong with me. He never ordered any test and l didn't get a return visit. Then l was sent to the hospital l don't know how many days after it just a blur now. So l have an appointment with the doctor from the psych ward. He a neurologist/ psychiatrist and then my family practitioner, eye doctor and then next month the liver doctor. Which l am so unsettled about seeing him since he told me everything was ok when he had me admitted. He told me my ammonia levels were fine but then later l had my levels checked and it was high. So l am just praying. But now since l am back on my xifaxan and l have gotten off some meds l am fine. I hope you had a wonderful holiday because since l been out the hospital my grandson turned 1. Znd l had Christmas /New Year together. And l had my adopted grandchildren around me this weekend. I just came back from the movies with one of them today. So that's what it's all about spending time with those that love you and you loving them.

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Replies to "@rosemarya Happy New Year Rosemary. I know you haven't heard from me in awhile. I have..."

Lisa, I am happy that you thought of me! I received a surprise phone call from a girlfriend today, and now I get a message from you. I am ready to do a happy dance.
I am sorry to hear that you have spent so much time in and out of medical/hospital care. Nobody ever promised us a smooth ride, did they? I feel that your doctors are trying to get your system in order, and are referring you to get the necessary treatment to do that. I think that I might have an idea of why the liver doctor wants to see you again, and that is to check the ammonia levels after you have been back on the medicine. There must be some reason that they are going up and down, that is why it is important to take the meds as directed, and to keep the follow-ups.
I know that you enjoyed the time with grandchildren, and they must have been happy that you were back home again. I will be going to grandchild's birthday party tomorrow and I will enjoy watching the kids running about and having real kiddie fun!
I hope your health continues on the mend during 2019.
Are your new doctors nearby? Will you return to Rochester for the liver doctor? Let me know how you are doing.
Hugs.

@techi Lisa, you may want to ask your Liver doctor or hepatoligist (sp?) about adding lactulose to the xifaxin in order to aid the elimination of toxins in your body. This combination worked well for me. I am sorry to hear that you were admitted to the psych ward for this. I alos was jn the hospital over Christmas but in reality it was the safest place for me with the complications I had. Be well.