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Liver transplant - Let's support each other

Transplants | Last Active: 4 days ago | Replies (1617)

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@contentandwell

Thanks, @rosemarya. My son and daughter of course were not here most of the time so rarely saw an HE episode. My son did come home one time when one put me in the hospital but my worst episodes passed within two or three days so by the time he got here I was on the mend and out of the hospital. My daughter was present for one. My husband put up with the brunt of it and most of the time he was great. The husband in the couple we are closest with was a huge support for my husband. My husband called him two times when I was having an episode and he came over. One time I was almost catatonic and he told my husband he had to get me to the hospital. I was uncooperative so an ambulance was called. We were still at the point that we did not know what was causing these episodes so that made them even more frightening.
Our doctor friend suggested that it might be from one of the medications I was on because there are a number of medications that can cause confusion. Interestingly I was able to discontinue these medications and had no episodes for over three months so we thought that had been it. They then resumed though. I can't help but think that at least one of those medications contributed to causing the episodes but as my cirrhosis progressed they didn't need something else to contribute to them.
JK

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Replies to "Thanks, @rosemarya. My son and daughter of course were not here most of the time so..."

Hi, thanks for sharing. Are you post- liver transplant now? Have you had any permanent effects or HE episodes since? I am concerned for my husband who is pre-transplant, and though improving because of continuous dialysis in ICU. It feels like it’s been one long 2 month episode. Hope you’re doing well!