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Liver transplant - Let's support each other

Transplants | Last Active: 4 days ago | Replies (1617)

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@rosemarya

JK, I cannot even begin to imagine how frightening this had to have been for your family. I never had an HE episode, but we were told to be aware and on the lookout in case something developed between my appointments. I think that it is a good thing that you are telling your experience, because somebody who reads this might 'recognize' themselves and know to seek additional medical opinions.

I am well aware, too, of the pain that my family endured during my own difficult times. I love and appreciate them even more because of it.

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Replies to "JK, I cannot even begin to imagine how frightening this had to have been for your..."

Thanks, @rosemarya. My son and daughter of course were not here most of the time so rarely saw an HE episode. My son did come home one time when one put me in the hospital but my worst episodes passed within two or three days so by the time he got here I was on the mend and out of the hospital. My daughter was present for one. My husband put up with the brunt of it and most of the time he was great. The husband in the couple we are closest with was a huge support for my husband. My husband called him two times when I was having an episode and he came over. One time I was almost catatonic and he told my husband he had to get me to the hospital. I was uncooperative so an ambulance was called. We were still at the point that we did not know what was causing these episodes so that made them even more frightening.
Our doctor friend suggested that it might be from one of the medications I was on because there are a number of medications that can cause confusion. Interestingly I was able to discontinue these medications and had no episodes for over three months so we thought that had been it. They then resumed though. I can't help but think that at least one of those medications contributed to causing the episodes but as my cirrhosis progressed they didn't need something else to contribute to them.
JK