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Liver transplant - Let's support each other

Transplants | Last Active: 4 days ago | Replies (1617)
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@contentandwell

@stella25 Yes, I was fortunate, and it was the neurologist who first mentioned liver possibly being the cause of the HE episodes. I went to him because it was thought the confusion was from something neurological. From what I know the HE episodes should have been a HUGE red flag, and jaundice should be also.
I never had jaundice which I guess was probably the reason that my liver was not immediately suspected, but not everyone does get jaundice, and sometimes the AST and ALT numbers are not really elevated much.
I am so happy for your son that he was smart, found some answers and persisted in getting a diagnosis.
JK

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Replies to "@stella25 Yes, I was fortunate, and it was the neurologist who first mentioned liver possibly being..."
Rosemary, Volunteer Mentor | @rosemarya | Jan 4, 2019

JK, I cannot even begin to imagine how frightening this had to have been for your family. I never had an HE episode, but we were told to be aware and on the lookout in case something developed between my appointments. I think that it is a good thing that you are telling your experience, because somebody who reads this might 'recognize' themselves and know to seek additional medical opinions.

I am well aware, too, of the pain that my family endured during my own difficult times. I love and appreciate them even more because of it.

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