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Liver transplant - Let's support each other
Transplants | Last Active: 7 hours ago | Replies (1567)Comment receiving replies
@stella25 Your son has not had any HE episodes, correct? I would think they may not put him on anything unless he does experience them. I sincerely hope that your son, like many people who have cirrhosis, never have to go through that. As I said before, if someone is a victim of HE episodes the caregiver has to try to be understanding as difficult as it may be. My first HE episode lasted for a relatively short amount of time but since it was so odd my husband brought me to the ER and then afterward I had to see my PCP. She called me on the phone after I had an appointment with her and told me she thought I had Alzheimer's! Two other doctors, one a neurologist, were stunned that she would do that. A lot more has to be done before Alzheimer's is diagnosed. After that I did some research to find a new doctor.
JK
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That is correct. My son has not had an episode. We were concerned because he lives alone. I'm about 40 miles away. We text daily and he has told his coworkers & friends about his PSC and the possibility of having an HE episode. We were thinking it might be a good idea just as a precaution. I'm glad you went in search of a new doctor after being told you had Alzheimers! About 6 months prior to my son being diagnosed with PSC he told his GP who insisted he had allergies that he thought it was his liver. His GP commented that my son did not fit the profile for liver disease. Good thing my son did not accept that answer and went in search of and found his current hepatologist who was able to diagnose the PSC almost immediately.