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Liver transplant - Let's support each other

Transplants | Last Active: 4 days ago | Replies (1617)

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@stella25

Oh my, I'm so sorry you had to go through those episodes. How scary for you & your loved ones. There was another medication my son's hepatologist considered but I don't remember what is was. Could be the xifaxan you were taking. It was during that office visit they discovered he had a blockage in the bile ducts and was admitted to the hospital for an emergency ERCP. They decided to hold off on the HE meds for now. He will have a follow-up ERCP in two weeks and we will readdress it at that time.

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Replies to "Oh my, I'm so sorry you had to go through those episodes. How scary for you..."

@stella25 Your son has not had any HE episodes, correct? I would think they may not put him on anything unless he does experience them. I sincerely hope that your son, like many people who have cirrhosis, never have to go through that. As I said before, if someone is a victim of HE episodes the caregiver has to try to be understanding as difficult as it may be. My first HE episode lasted for a relatively short amount of time but since it was so odd my husband brought me to the ER and then afterward I had to see my PCP. She called me on the phone after I had an appointment with her and told me she thought I had Alzheimer's! Two other doctors, one a neurologist, were stunned that she would do that. A lot more has to be done before Alzheimer's is diagnosed. After that I did some research to find a new doctor.
JK