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Liver transplant - Let's support each other
Transplants | Last Active: 4 days ago | Replies (1617)Comment receiving replies
@stella25 I was diagnosed with cirrhosis while in a life threatening HE episode. Took 3 weeks to come out of it and i still never regained full cognizance. I was on lactuose for 2 years and rifaximin as well. I didn't have any HE episodes there after. I just had my transplant 1 month ago and am so happy no lactuose anymore.
Replies to "@stella25 I was diagnosed with cirrhosis while in a life threatening HE episode. Took 3 weeks..."
@gaylea1 That was one long HE episode. The most mine lasted were the ones that put me in the hospital and that was generally for two or three days, but it sure seemed longer.
After my transplant, when I was feeling some pain, my husband would say "no more lactulose" to make me feel better. It really is miserable stuff. My daughter would make me laugh by pronouncing it in a very odd manner. You have to do whatever you can to find something to laugh about.
You were fortunate that the medications prevented you from having any more episodes. What was your MELD at transplant? It sounds as if you are doing very well, that's wonderful. I did very well too. It really does seem like a miracle.
JK
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How are you doing after just a month? I wish you a speedy & successful recovery!