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Liver transplant - Let's support each other
Transplants | Last Active: 3 days ago | Replies (1617)Comment receiving replies
Stella, It also took between 1 - 2 years for me to have a PSC diagnosis. I was just over 50 then.
I was 60 when I received my transplant from an anonymous deceased donor. And the time in between was a mix of ups and downs. I was also told by my GI when it was time to go to the liver transplant team for evaluation, and I was both comforted and frightened by that.
I know that we are a rare group, and that is how I found Mayo Connect. I wanted to meet someone else who had a transplant due to PSC.
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Rosemary - So glad I joined this group and happened upon you. You have given me hope & encouragement as we begin our journey to transplant. Rare group indeed. I've yet to tell a friend or family member about my son's PSC who knows what PSC is. I have a couple of close friends who have been doing medical transcription for 20+ years and even they had never heard of it. Even rarer still is your being female and 50 where we have learned PSC predominantly affects 30-40 year old men. I wish we did not have to meet under these circumstances but am extremely grateful you have chosen to use your experience to mentor and guide us.