@stella25 most of us who have had cirrhosis and liver transplants have had other causes, but we too can help if you have questions not directly related to PSC, Rosemary knows so much about all of that, and is the expert on PSC. She was fortunate in not having HE episodes, whereas I did have them.

When I was finally diagnosed with cirrhosis after almost a year and a half of not knowing what my problem was, I went to a hepatologist. She said I probably had cirrhosis for 10 years, cirrhosis takes a long time before presenting itself. I had some vague symptoms that were not attributed to cirrhosis at all. So, it’s not unusual that your son had it for a long time also. I then realized that my shaky hands and diabetes started just around the time that the hepatologist indicated.

I had my transplant in September 2016 and have been doing well ever since. I hope your son becomes a candidate soon and doesn’t have to wait too long for a transplant.
JK