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Liver transplant - Let's support each other

Transplants | Last Active: 6 hours ago | Replies (1623)

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@rosemarya

Hi, and Welcome to Connect. I am happy that you have joined this transplant discussion group after stumbling upon it! Congratulations on your upcoming liver transplant 1st anniversary! Do you have any plans to celebrate, or honor the special day?
I am a liver/kidney recipient. I found Mayo Connect when I was looking for other people who had either transplanted, or who had my disease (PSC). Like, you, there was no one in my vicinity.
I commend you and your wife for your joint plan to share with others in your area who are affected by liver disease. I don't have any 1st hand support group experience to share. When do you plan to get it activated?

I invite you and also any members of your group, to come visit Mayo Clinic Connect. I welcome you to join in and to share your experience with others from nearby and distant places. As you have already indicated - It can be lonely out there. The purpose of Connect is to share our experiences with others, and to support and encourage others along the way.

This and That and Talk - My Transplant
https://connect.mayoclinic.org/discussion/this-and-that-and-talk-my-transpant/
Living Life after your Transplant
https://connect.mayoclinic.org/group/transplants/tab/discussions/?pg=6#group-92-activitystream
I recommend that you browse the Newsfeed posts in the Transplant Pages.
https://connect.mayoclinic.org/page/transplant/
@parmcat, Do you intend this support group to be at the hospital where you transplanted?

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Replies to "Hi, and Welcome to Connect. I am happy that you have joined this transplant discussion group..."

I am 5 years post transplant. Stumbled on this several years later. I think it would be helpful if mayo social workers or nurse coordinators gave people this specific information. I was not given it. I remember one doctor mentioned striking up conversations with other people in the waiting rooms to help people connect. It's hard to do. If there is this around, it would be awesome for more to know. I still learn so much here and get ideas of what to bring up to my care team