@rrichardparker, I want to re-welcome you to Connect. It has been a while since I have seen you in the transplant group. I am also a transplant recipient. I joined Mayo Connect because I wanted to meet and to learn from other transplant patients. I learned that as a recipient, I can share my own experiences to help others along their own journey. I have a feeling that you have learned a lot from your transplant, as well as how to manage your self care for 6 post transplant years.

Are you interested in supporting others who are like yourself?
I invite you to look thru the transplant discussions that are happening because there have been a lot of new members and conversations. You are always welcome to join in anywhere, with your own comments, questions, and helpful suggestions.
How can I help you get started?

Hi I am 18 months post liver transplant and struggling to keep it all together. I am physically fine, just emotional, anxiety, and depressed.
no drive left it seems.

michael

Congrats Mr Parker! I have had my liver for just over two years. The transplant team in Phoenix saved my life. I was fortunate enough to get a transplant on the day I was listed! I am so grateful to the people who made my life whole again. Mayo was recommended by someone I talked with at UNOS or I would not be writing this now. I was diagnosed with HCC which was treated with radiation prior to the transplant. This has been a difficult journey for me and my caregivers. Everyday is a gift now. You find out who really loves you because this is not easy. Scans every 90 days, weekly labs, pills, pills, pills. Everolimus, no Tacrolimus. Oh geez your kidneys are getting hammered by the drugs. It can be a roller coaster! My wife of 14 years said “I didn’t sign up for this”. We are splitting up.
Now we get to deal with this SARS-CoV2 pandemic? I have been vigilant even prior to COVID-19 by self quarantine in my vehicle until my appointments. LabCorp and my local doctors are using the same criteria for face to face procedures or telemedicine. I was worried about catching the virus since we have suppressed immune systems. I am not as afraid of contracting the virus as I was because immune suppression could be a positive thing. I have read mixed reviews on this one. The people who fair well seem to have a controlled immune response. Someone help me out here. I am taking every precaution but many misinformed people who are spreading this don’t seem to care. It’s almost inevitable that eventually we will contract this virus unless a vaccine or treatment is found.

WOW that is awesome!!! My son is very sick now and waiting to even get on a list. If you can share anything with me it would be comforting I am sure.

I'm also 6 years post transplant