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@twocents

I am new to this group. My doctor just prescribed Prolia, but with all the side effects, I'm not sure that's the way to go. In reading all of the discussion on Prolia, I haven't seen anyone share their results. I'm wondering if anyone has actually improved their bone density by having the prolia injections. Thanks

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Replies to "I am new to this group. My doctor just prescribed Prolia, but with all the side..."

I have been on Prolia for 3-1/2 years. For the spine, my T-score increased from -2.8 to -2.3. The femoral neck and total femur did not change. My femoral neck is -2.1 and mean femur is -1.6. I am now 59. I was diagnosed with severe osteoporosis at the age of 41. At that time, my spine was -3.7, my femoral neck was -2.6, and my mean femur was -2.5. It has taken 17 years for me to see this type of increase. I have been on Fosomax, Forteo, Reclast, and Prolia. I saw the greatest increase during the two years that I was on Forteo. The problem with it for people on Medicare is that it's going to be covered on the prescription drug plan, and it's expensive. I don't know if the manufacturer has made any special deal for Medicare recipients.

My last bone density xray showed that I now am low risk. after about 2 years on Prolia. However, I am increasingly worried about the side effects. Especially, I am experiencing rapid hair loss, one of the possible side effects. I am seriously considering discontinuing the injections.

I've been on prolia for one year and have a dexascan scheduled in a couple weeks. I've written myself a note to remember to let you know if it made a difference. In 2013 I fell and fractured my femur (age 60) and discovered I had severe osteoporosis. I've broken the other leg and a wrist since then. I took alendronate (generic fosamax) for five years and I improved to osteopenia. A year ago my dexascan showed severe osteoporosis again so Dr. switched me to Prolia. I too am anxious to see if there is change.

Hi,

Do NOT start this drug. It is terrible. First of all, this is a drug with chemotherapy chemicals and is used to treat bone cancer. I have had terrible pain in the leg bones, have lost 1/4 of my hair, and the joints in my fingers have all swelled permanently. I wish that I had never heard of this drug. I had 2 shots and will never take another one - the thing is that all the osteoporosis drugs have similar chemical make-ups. Before you start any drug be sure YOU do lots of research. Do not believe the doctor - mine told me that there were no side effects which is not true. My doctor (chair of the endocrinology department) now agrees that I will only do calcium and Vitamin D (ergocalciferol) and exercise. My T-score is -4.7 but this drug is too bad for me to ever take again! K