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Art for Healing

Just Want to Talk | Last Active: Feb 15 2:48pm | Replies (487)

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@contentandwell

@marvinjsturing Your poor daughter, what a lot to go through, and what a lot for you too, given your own health problems.
I know about stem cell treatments for cancer, but a month in the hospital? That would be difficult for anyone but you do what you have to do.

If you haven’t checked other transplant hospitals it could be worth some more checking. At the time I was on the liver transplant list my home hospital was generally transplanting at MELDs in the low 30s but Mayo was fairly certain I would get transplanted at around 28. I was at 28 and about to get listed at Mayo, but my transplant came through at MGH. I know the wait for kidneys is longer, my niece’s husband has been waiting and on dialysis for about 5 years (not sure if he was on dialysis that whole time) and is pretty close to the top of the list at his chosen hospital now so hopefully I will get a call very soon that he’s been transplanted.
Is there for those waiting for kidneys comparable to MELD.

Prayers for your daughter and for you.
JK

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Replies to "@marvinjsturing Your poor daughter, what a lot to go through, and what a lot for you..."

@contentandwell For kidney patients, they measure the amount of creatinine in your blood. Then they use a formula that takes into consideration your creatinine level, you age, your gender, and your race to calculate your GFR. Your GFR has to be below 20 to qualify for a transplant. For the last 3 years, my GFR has been in the 10-17 range. My doctors are surprised that I am not on dialysis yet.