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Just Want to Talk | Last Active: Feb 15 2:48pm | Replies (487)

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@marvinjsturing

@gingerw @hopeful33250 Everything is holding steady for me. Although I was not placed on the active list until this summer, I was listed on UNOS last September so l have just about one year in on the transplant list. I have appointments with my local oncologist in September and my local nephrologist in October. I am thinking about getting in touch with Nebraska Medical. I contacted them a year ago. They wouldn't talk to me until I was cancer free for 5 years. I am there now. Mayo's wait time is 3 to 7 years. At Nebraska Medical, it is 1 to 5 years.

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Replies to "@gingerw @hopeful33250 Everything is holding steady for me. Although I was not placed on the active..."

@marvinjsturing If you are a veteran, check with the VA. It is my understanding they keep a separate list going and will send you wherever need be for a transplant. My husband double-listed, and ended up getting his transplant about 150 miles from home.
Ginger