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@hopeful33250 She just finished her 3rd round of chemo on Monday. She had to arrive at 7:30 AM for blood tests. By the time everything was complete, she didn't get home until 3:30 AM on Tuesday morning. Three more chemo treatments to go. She was told on Monday that under the standard protocol for her cancer, once the chemo is done, she should have a stem cell transplant which would require a one month stay in the hospital. She can also decide to participate in a clinical trial. If she does that she may or may not get the stem cell transplant depending on which group she is placed in. It has been very hard on her husband - lots of scheduled and unscheduled trips to the doctor and the hospital. She needs frequent platelet and blood transfusions and they have to keep removing fluids to keep her lungs from collapsing
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@marvinjsturing She is certainly going through a lot right now. Fighting cancer is never easy, but this sounds especially difficult. I appreciate the update.
How are you feeling, Marvin? Any news on the transplant front?
@marvinjsturing Your poor daughter, what a lot to go through, and what a lot for you too, given your own health problems.
I know about stem cell treatments for cancer, but a month in the hospital? That would be difficult for anyone but you do what you have to do.
If you haven’t checked other transplant hospitals it could be worth some more checking. At the time I was on the liver transplant list my home hospital was generally transplanting at MELDs in the low 30s but Mayo was fairly certain I would get transplanted at around 28. I was at 28 and about to get listed at Mayo, but my transplant came through at MGH. I know the wait for kidneys is longer, my niece’s husband has been waiting and on dialysis for about 5 years (not sure if he was on dialysis that whole time) and is pretty close to the top of the list at his chosen hospital now so hopefully I will get a call very soon that he’s been transplanted.
Is there for those waiting for kidneys comparable to MELD.
Prayers for your daughter and for you.
JK
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@marvinjsturing Thank you for letting us know. It has to be stressful on so many. How are you doing in all this, Marvin, given your own health concerns?
Ginger