How to manage SIBO symptoms?

I am struggling with Methane SIBO and Gastroparesis for a couple years now. I was on Xifaxin last year and it worked quite well and had to take it again and the results didn't last as long and the symptoms returned. I had to transfer my care locally as it's costly for me to travel to Mayo. I was then prescribed by my local GI doctor, the Antibiotic Neomycin in combination with Flagyl. I was on a daily dose of 6000mg Neomycin and 1500mg Flagyl. It didn't help and was wondering if anyone has been prescribed Neomycin and at what dose? I ask because I suffered hearing loss and nerve damage from being on a high dose for over 10 days. I also developed an insanely loud noise in my ears called Tinnitus. I was told I have Neurotoxicity. No one can help that from what I've been told. I was in the ER 2x from complications and have seen maybe 6 specialists. Has anyone ever tried Neomycin or anyone have knowledge on dosage? I called my Mayo Doctor and he said they don't even use Neomycin. The other doctors I saw were shocked by the dosage and everyone referred me to Mayo for help but Mayo has told me they can't help further and I have to "live" with it. I'm desperate for anyone who can help! Thank you.

My gastroenterologist thought I had SIBO.
If I remember correctly.. years ago... she took a biopsy:

Took an antibiotic: OK, then
symptoms continued with itchy skin(dermatitis herpetiformis).

Follow up much later at the only out patient hospital that did breath testing for celiac disease.
I cannot eat wheat!

Please find out what foods is causing this. I had it, it's a food insensitivity. Will have to do the work and eliminate foods till you find which ones are causing the bacterial overgrowth. Meds are temporary and cause many side effects. You will get use to a limited diet because you'll feel so much better it won't be worth the few minutes of pleasure. You'll find all kinds of ailments you have will go away!

<p>I've been battle SIBO for months now and have tried Rifaxin, Flagyl and antiviral meds. Also have tried Zithromax and am taking Atrantil (an herbal remedy). I can't eat sugar or carbs or my stomach hurts quite alot. Any suggestions?</p>

I have been all over this forum after doctors told me I had this or that. I was starting to think I was crazy. Then one of my tests showed gastroparesis. Now my new gastro from down state has ruled out everything but now she has zeroed in on SIBO as well as BAM.

Between these two things my symptom list is long. One of my more annoying symptoms is this dang inner vibration that seems to be my stomach not working properly. My hair falls out, I have burning diarrhea then constipation. The Vagus nerve gets irritated setting off anxiety. Weird sweating episodes, light headedness, wright loss, dry skin. Insomnia and incredible fatigue. Low b12, low vitamin D. However they can't figure out my high calcium.

It has been absolutely awful. Doc should be prescribing antibiotics this coming week.

I decided to join this discussion as it appears that I am now in what I call the SIBO limbo or no man’s land. From reading these posts it seems like my struggle has just begun. My symptoms began in mid July and it is believed that two consecutive rounds of antibiotics to treat two different conditions triggered it. I cracked a crown in late May and ended up with an extraction and implant. I took an antibiotic then but can’t remember what it was. Then I went for my annual physical in late June and was prescribed Clindimycin for a UTI. Symptoms of diarrhea, gas and bloating started about a week after I finished the Clindimycin. Long story short, my internist thought I had contracted CDiff from the Clindimycin and put me on Flagyl for ten days and performed a stool test which came back negative. The Flagyl helped for a week but then the symptoms restarted. My internist basically dismissed me at that point and told me to find a GI doctor, which took a few weeks and lots of phone calls. The GI doctor performed some routine blood work which was normal, and sent me for a CT scan of my belly, which fortunately also came back normal. He diagnosed me with SIBO and dysbiosis based on my symptoms (no breath test) and put me on another round of Flagyl. The cost of the Xifaxan would have been nearly $1500.00 for two weeks. So I took the Flagyl again since I tolerated it the first time. It helped for about two weeks and I then gradually slid back to the loose stools and lots of gas. He also put me on a low FODMAP diet, which helps a little but does not eliminate symptoms either. I have lost 15 pounds in three months due to diarrhea and being afraid to eat anything. I had a routine colonoscopy last year which was normal and I think that is why the gastro doctor is not in a rush to do another one (plus the normal CT scan). So here I am. I am not on medication right now, not eating much, afraid to eat anything. I am not even sure I have the correct diagnosis, but too many carbs make me gassier and when I am gassier I also tend to have looser stools. I go to work but rarely socialize with friends because it all revolves around food. Thankfully I am married and my husband has been very supportive. I cry a lot and have dark moments when I think I have cancer or will never be well again. I am afraid of what the gastro doctor will say when I see him next or that he will tell me there is nothing else he can do for me like my internist who basically abandoned me. How long have other group members been coping with this and what has helped? I am now researching a diet called the specific carbohydrate diet. Anyway, feeling desperate and looking for solutions like all of you. Thank you for “listening.” I hope I can also be of support to others here.

I found a technology from Ireland that has been a life changer in drilling down into what my specific food offenders are http://www.FoodMarble.com 40 million Americans have some form of this,you did a beautiful job describing the disease and lack of solutions. Also a new company that provides meal(very tasty) for us people is modify health.com
Best of luck

Hello all,
I have not been on in many months because my mental health is very bad.
A little back story, I diagnosed myself with slipping rib syndrome and drove 8hrs to have official diagnosis and surgery. It alleviated a lot of my debilitating pain, internal vibrations, back burning etc.
Fast forward and I still have intense abdominal pain and finally after asking for tests I have SIBO. There is so much contradicting information I'm driving myself mad. I started antibiotics yesterday and still have abdominal pain. I know it can take time.
I also continue to get a lump near my belly button and when its palpitated you can feel the abdominal aorta. PT is very confused if its intestine or muscle spasm. My doctors do not listen when I say I have pain there, but something feels off and creates pain. At this point I don't know if its a has bubble or muscle. I've had scans last summer and there is nothing to show, but what is the lump? And why does it hurt?
I posted this in hopes to find someone with successful treatments of SIBO?? I just want to feel better 🙁