Chronic Right-Side Abdominal/Back Gallbladder Pain

Posted by mkl8425 @mkl8425, Oct 21, 2018

A quick little medical history about myself: I have had IBS for years and have been able to manage it well. I am lactose intolerant, with certain dairy products affecting me worse than others. And I have been seen by an ENT for a chronic GERD related cough for which I was prescribed Prilosec.
For the last two months, I have been feeling an abdominal pain that has moved around as it progressed. Even before this, I have noticed that I have been burping quite a lot. It first started in episodes that would come for a few days then go away and come back a few days later. The first episode was on the right side near my appendix but then went away on its own after a few days. Then it came back on the other side and another time it was more in the back near my kidneys. Now it is becoming more frequent and is accompanied by occasional back pain. All of the pains are relatively mild but are becoming more frequent now. I have been burping a lot more now and it typically gets worse after a meal. The pain now is predominantly in my upper center/left abdomen. I went to my GP about five days ago, and she put the stethoscope up to my gut and said she heard A LOT of gas in there. I also have not passed a normally sized bowel movement in well over a week. They have been infrequent and smaller than normal, very thin, but normal colored. I have taken Miralax once a day for five days now but still have not passed a normal bowel movement, just smaller infrequent ones. Anyways, she ran some blood work and urinalysis on me to check kidney, liver, and pancreatic functions. Everything came back normal (somewhat of a relief) and I have a follow up with her in two days. Since my last visit, I have tried to limit my dairy intake, and well as my carb intake, such as breads and such. I have also been eating more fiber-rich foods and nothing has changed, in fact, things have been getting worse since my last visit. The back pain now comes instantly when I get up in the morning but fades over the day. And the GI symptoms flare up after I eat anything, especially the excessive burping. I've still been eating the same amount of food and my weight has stayed the same, but these symptoms are not only uncomfortable, but they are causing me such much unwanted stress and anxiety.

Does anyone have any similar stories? Can anyone share any ideas as to what might be going on or what I should ask my GP in two days?
Thanks!

Interested in more discussions like this? Go to the Digestive Health Support Group.

@4man28

Hi I'm having similar frustrations...I am 28 years old female, i am hoping to maybe get some answers on here from anyone who has had similar problems. About 3 months ago I started to get weird back pain it was in the middle of my back more to my right side it would go from mild then with activity would get really tense tight pressure feeling then I would get really nauseous…thought I was maybe getting the flu went on for about 2 days like this then started a dull sharp pain right below my right rib cage and would radiate the pain to my back . only relief I would get would be laying down with a hot water bottle behind my back on my right side. In the past 3 months it goes from a week or 2 of every symptom very severe throwing up constantly sick to then being bit better for a week then flares up again feels worse…my pain tolerance is high so the constant burning stabbing feeling on my side I can handle but when the nausea sets in it's very hard to function. I have been to the doctor they have done a ct , they did an ultrasound of my kidneys, I have had a endescopy done, blood tests done etc all say normal the only thing was my blood tests showed my liver enzymes were slightly elevated but was told that was of no concern…I am someone who hates to even go to the doctor would like to just pretend that I'm fine and continue on but as much as I would like to my pain on my side stays…side note I had my gallbladder removed over a year ago …I was told by my surgeon that i should have my gi consider sphincter of oddi dysfunction? But seemed like she didnt really think it was…honestly very very tired of doctors and family thinking I'm crazy and it's just something simple like heartburn etc…if I could magically say I'm better and it was that easy would have done that long time ago. 

REPLY

Edit          Following

 Report

Jump to this post

Hello @4man28

I found the "Sphincter of Oddi Dysfunction" mentioned by your surgeon to be interesting so I did some research and looked it up. It is something that happens after a gallbladder removal. Here is a link to some information about it,

https://my.clevelandclinic.org/health/diseases/14516-sphincter-of-oddi-dysfunction.

If you read the symptoms you will see that many are quite similar to what you are experiencing and the interesting thing is that it is more frequent with people who have had their gallbladders removed.

Here is another article which discusses this as well and does mention the symptom of elevated liver enzymes.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4087924/ This article also describes some of the tests that can diagnose it.

You may want to search for a doctor who has some expertise in this area. If you are near the Mayo facility in Minnesota, here is information about a doctor who is experienced with this, https://www.mayoclinic.org/biographies/topazian-mark-d-m-d/bio-20054524.

We have another discussion about this on Connect, https://connect.mayoclinic.org/discussion/i-have-sphincter-of-oddi-dysfuncfion-it-causes-severe-upper-abdominal-pain/?orderby=DESC#chv4-comment-stream-header.

I would like to know how you are doing with this process of finding an answer to your pain. Will you provide an update?

REPLY
@joshk

Hi all. Trying to find others who maybe have had a similar experience and figured out what’s wrong or how to deal. I have been have severe abdominal pain for months. A lot of the pain originates in the upper right quadrant of my stomach, right below the rib cage. I do have pain on the left upper quadrant and sometimes in the center (heart is fine). Also I have nausea with vomiting, regurgitation, heartburn throughout the stomach and cramps. My symptoms have been getting worse and worse and no diagnosis is on the horizon.

I am a 32 yr old male I had the lap band in 2007. I began to have stomach issues in 2016 and was basically in the fetal position for 3 weeks from intense stomach pain. ER and multiple drs couldn’t figure it out but the pain eventually went away and drs couldn’t figure it out and said come back if pain comes back. Few months later I began to have some discomfort and heartburn and pain. Thought it was the lap band. Had lap band removed March 2018 but nothing was wrong except the port was turned a bit. Had a harder time with recovery from band with pain in the middle of my stomach, next to one of my scars where the port used to be.

Heartburn started to affect me greatly after the band removal and started seeing GI. I was having some abdominal pain, with a lot of heartburn regardless of what I ate. Dr Put me on Carafate and omneprazol and told I have reflux. He also did a gastric emptying test which showed I have dumping syndrome.

The pain in my abdomen started growing in my upper right quadrant with sharp acute pain. Sometimes it felt like someone was twisting my insides, sometimes feels like a hot poker being stabbed into my stomach and other times like my stomach is being squeezed in a vice. I changed drs. Had an endoscopy , which showed grade B ulcers in esophagus with gastritis but no hpylori or Barrett’s. my symptoms started to get progressively worse and dr wanted to schedule capsule endoscopy but insurance wouldn’t pay until colonoscopy was performed. Had colonoscopy which was normal. As I was talking to dr after colonoscopy I was in tears to dr to schedule next test quickly because pain was becoming unbearable. I did not accept any pain medications from drs and instead use marijuana for the pain. Had a ultrasound a few months ago which showed 21cm fatty liver non alcoholic. I had a CT scan which showed prior infection damage to my small bowel. Every time I would look down or bend over I would get very nauseous with vomiting and My wife just gave birth in August so I look down a lot.

Very shortly after my colonoscopy I started to become unable to finish a meal. Food started to loose tase and eventually I stopped eating altogether. This was Around December 23. Since then I have lost 30 lbs. I am maybe able to push down 500 or so calories a day. Usually only after I smoke a lot of marijuana and even then I usually only have a few bites. I don’t feel hungry at all, even after smoking. It feels like my stomach/abdomen is always clenched and shut. If I do suddenly feel hungry if I grab something and try to eat I loose the sensation immediately and in mid chew the food tastes horrible.

My nausea and heartburn have subsided because of the no food but come back with anything I try to eat ( anything including plain rice, plain oatmeal and plain bread). But I still have regurgitation if I try to have anything or even with eating nothing. The pain is normally constant unless I smoke. I recently had a capsule endoscopy which showed gstroparesis (directly opposite the gastric emptying test) but a normal small bowel.I switched to a new dr in New York City whom is the head of the gastric dept in his hospital. He gave me peppermint pills and suggested CBD and ordered a new upper GI to see if my stomach is being pulled by anything. He took me off a lot of meds. I don’t know if the peppermint pills work but at least when I burp or regurgitate my throat tastes like peppermint.

I can’t keep living my life like this. My memory is shot to hell from the weed or the constant pain, take your choice. I own my own business and can barely function. I become unable to do anything or respond sometimes when the pain consumes all my thoughts.

From the lack of eating my energy is starting to diminish, I am getting migraines if I wait too long to eat something and I am starting to have a rash on my face. My sex drive however has increased. I have been getting lightheaded when I stand suddenly and the rest of my body is starting to ache more. I am trying to not go to the hospital. I don’t believe they will do anything aside from make sure I am stable and send me home to follow up with dr. Anyone have anything?

As a small aside- two days ago I ate a small amount and took a pull from my marijuana pen. As I stood up I let out the smoke and my vision got very clouded, my ears started ringing loudly and I began to sway. I felt like I was almost loosing consciousness. I grabbed my table and chair and held on. After 10-15 seconds my vision and hearing began to clear. This has not happened since and scared me deeply.

Any input welcome. Thank you!

Jump to this post

Hi I'm having similar frustrations...I am 28 years old female, i am hoping to maybe get some answers on here from anyone who has had similar problems. About 3 months ago I started to get weird back pain it was in the middle of my back more to my right side it would go from mild then with activity would get really tense tight pressure feeling then I would get really nauseous…thought I was maybe getting the flu went on for about 2 days like this then started a dull sharp pain right below my right rib cage and would radiate the pain to my back . only relief I would get would be laying down with a hot water bottle behind my back on my right side. In the past 3 months it goes from a week or 2 of every symptom very severe throwing up constantly sick to then being bit better for a week then flares up again feels worse…my pain tolerance is high so the constant burning stabbing feeling on my side I can handle but when the nausea sets in it's very hard to function. I have been to the doctor they have done a ct , they did an ultrasound of my kidneys, I have had a endescopy done, blood tests done etc all say normal the only thing was my blood tests showed my liver enzymes were slightly elevated but was told that was of no concern…I am someone who hates to even go to the doctor would like to just pretend that I'm fine and continue on but as much as I would like to my pain on my side stays…side note I had my gallbladder removed over a year ago …I was told by my surgeon that i should have my gi consider sphincter of oddi dysfunction? But seemed like she didnt really think it was…honestly very very tired of doctors and family thinking I'm crazy and it's just something simple like heartburn etc…if I could magically say I'm better and it was that easy would have done that long time ago. 

REPLY

Edit          Following

 Report

REPLY
@joshk

Hi all. Trying to find others who maybe have had a similar experience and figured out what’s wrong or how to deal. I have been have severe abdominal pain for months. A lot of the pain originates in the upper right quadrant of my stomach, right below the rib cage. I do have pain on the left upper quadrant and sometimes in the center (heart is fine). Also I have nausea with vomiting, regurgitation, heartburn throughout the stomach and cramps. My symptoms have been getting worse and worse and no diagnosis is on the horizon.

I am a 32 yr old male I had the lap band in 2007. I began to have stomach issues in 2016 and was basically in the fetal position for 3 weeks from intense stomach pain. ER and multiple drs couldn’t figure it out but the pain eventually went away and drs couldn’t figure it out and said come back if pain comes back. Few months later I began to have some discomfort and heartburn and pain. Thought it was the lap band. Had lap band removed March 2018 but nothing was wrong except the port was turned a bit. Had a harder time with recovery from band with pain in the middle of my stomach, next to one of my scars where the port used to be.

Heartburn started to affect me greatly after the band removal and started seeing GI. I was having some abdominal pain, with a lot of heartburn regardless of what I ate. Dr Put me on Carafate and omneprazol and told I have reflux. He also did a gastric emptying test which showed I have dumping syndrome.

The pain in my abdomen started growing in my upper right quadrant with sharp acute pain. Sometimes it felt like someone was twisting my insides, sometimes feels like a hot poker being stabbed into my stomach and other times like my stomach is being squeezed in a vice. I changed drs. Had an endoscopy , which showed grade B ulcers in esophagus with gastritis but no hpylori or Barrett’s. my symptoms started to get progressively worse and dr wanted to schedule capsule endoscopy but insurance wouldn’t pay until colonoscopy was performed. Had colonoscopy which was normal. As I was talking to dr after colonoscopy I was in tears to dr to schedule next test quickly because pain was becoming unbearable. I did not accept any pain medications from drs and instead use marijuana for the pain. Had a ultrasound a few months ago which showed 21cm fatty liver non alcoholic. I had a CT scan which showed prior infection damage to my small bowel. Every time I would look down or bend over I would get very nauseous with vomiting and My wife just gave birth in August so I look down a lot.

Very shortly after my colonoscopy I started to become unable to finish a meal. Food started to loose tase and eventually I stopped eating altogether. This was Around December 23. Since then I have lost 30 lbs. I am maybe able to push down 500 or so calories a day. Usually only after I smoke a lot of marijuana and even then I usually only have a few bites. I don’t feel hungry at all, even after smoking. It feels like my stomach/abdomen is always clenched and shut. If I do suddenly feel hungry if I grab something and try to eat I loose the sensation immediately and in mid chew the food tastes horrible.

My nausea and heartburn have subsided because of the no food but come back with anything I try to eat ( anything including plain rice, plain oatmeal and plain bread). But I still have regurgitation if I try to have anything or even with eating nothing. The pain is normally constant unless I smoke. I recently had a capsule endoscopy which showed gstroparesis (directly opposite the gastric emptying test) but a normal small bowel.I switched to a new dr in New York City whom is the head of the gastric dept in his hospital. He gave me peppermint pills and suggested CBD and ordered a new upper GI to see if my stomach is being pulled by anything. He took me off a lot of meds. I don’t know if the peppermint pills work but at least when I burp or regurgitate my throat tastes like peppermint.

I can’t keep living my life like this. My memory is shot to hell from the weed or the constant pain, take your choice. I own my own business and can barely function. I become unable to do anything or respond sometimes when the pain consumes all my thoughts.

From the lack of eating my energy is starting to diminish, I am getting migraines if I wait too long to eat something and I am starting to have a rash on my face. My sex drive however has increased. I have been getting lightheaded when I stand suddenly and the rest of my body is starting to ache more. I am trying to not go to the hospital. I don’t believe they will do anything aside from make sure I am stable and send me home to follow up with dr. Anyone have anything?

As a small aside- two days ago I ate a small amount and took a pull from my marijuana pen. As I stood up I let out the smoke and my vision got very clouded, my ears started ringing loudly and I began to sway. I felt like I was almost loosing consciousness. I grabbed my table and chair and held on. After 10-15 seconds my vision and hearing began to clear. This has not happened since and scared me deeply.

Any input welcome. Thank you!

Jump to this post

I’m taking Zofran and Bentyl. It keeps it at bay. The pain doesn’t go away but the nausea is better. No over the counter meds make any difference. My stools are very floaty and sometimes almost white.

REPLY
@ritaself

I am hoping to find some help. For years now I have had flare ups (for lack of better terms) that begin with spontaneous vomiting. I can be fine then will have to throw up. Soon after I have pain in my left side just under my rib cage. Spent a week in the hospital a year ago and left with no diagnosis. Comes and goes. No specific food seems to cause it.
I have a history of diverticulitis and years ago was diagnosed with Crones but that diagnosis was incorrect. Had to go to the ER twice in 2 days with nausea and severe cramping. The pain now has started to spread to my rib cage.
I have no insurance and CT scans and blood work show nothing other than a slightly high white count.
Last year they found a touch of gastritis.
I do have an a uerysm on my celiac artery but know my symptoms are unrelated.
I can’t afford a colonoscopy with no insurance and currently am unemployed but cannot get any type of assistance. I am a 60 year old female.
Any help would be greatly appreciated.

Jump to this post

Hello @ritaself

I have read your post and I am sorry to hear about these uncomfortable symptoms and your lack of access to medical help currently. During the time of your hospitalization were any. meds suggested? Do you try to follow a diet for diverticulitis? What OTC products do you use to treat your current symptoms?

Perhaps by answering these questions you can help us understand more about your history of this long standing problem. Will you post again?

REPLY
@joshk

Hi all. Trying to find others who maybe have had a similar experience and figured out what’s wrong or how to deal. I have been have severe abdominal pain for months. A lot of the pain originates in the upper right quadrant of my stomach, right below the rib cage. I do have pain on the left upper quadrant and sometimes in the center (heart is fine). Also I have nausea with vomiting, regurgitation, heartburn throughout the stomach and cramps. My symptoms have been getting worse and worse and no diagnosis is on the horizon.

I am a 32 yr old male I had the lap band in 2007. I began to have stomach issues in 2016 and was basically in the fetal position for 3 weeks from intense stomach pain. ER and multiple drs couldn’t figure it out but the pain eventually went away and drs couldn’t figure it out and said come back if pain comes back. Few months later I began to have some discomfort and heartburn and pain. Thought it was the lap band. Had lap band removed March 2018 but nothing was wrong except the port was turned a bit. Had a harder time with recovery from band with pain in the middle of my stomach, next to one of my scars where the port used to be.

Heartburn started to affect me greatly after the band removal and started seeing GI. I was having some abdominal pain, with a lot of heartburn regardless of what I ate. Dr Put me on Carafate and omneprazol and told I have reflux. He also did a gastric emptying test which showed I have dumping syndrome.

The pain in my abdomen started growing in my upper right quadrant with sharp acute pain. Sometimes it felt like someone was twisting my insides, sometimes feels like a hot poker being stabbed into my stomach and other times like my stomach is being squeezed in a vice. I changed drs. Had an endoscopy , which showed grade B ulcers in esophagus with gastritis but no hpylori or Barrett’s. my symptoms started to get progressively worse and dr wanted to schedule capsule endoscopy but insurance wouldn’t pay until colonoscopy was performed. Had colonoscopy which was normal. As I was talking to dr after colonoscopy I was in tears to dr to schedule next test quickly because pain was becoming unbearable. I did not accept any pain medications from drs and instead use marijuana for the pain. Had a ultrasound a few months ago which showed 21cm fatty liver non alcoholic. I had a CT scan which showed prior infection damage to my small bowel. Every time I would look down or bend over I would get very nauseous with vomiting and My wife just gave birth in August so I look down a lot.

Very shortly after my colonoscopy I started to become unable to finish a meal. Food started to loose tase and eventually I stopped eating altogether. This was Around December 23. Since then I have lost 30 lbs. I am maybe able to push down 500 or so calories a day. Usually only after I smoke a lot of marijuana and even then I usually only have a few bites. I don’t feel hungry at all, even after smoking. It feels like my stomach/abdomen is always clenched and shut. If I do suddenly feel hungry if I grab something and try to eat I loose the sensation immediately and in mid chew the food tastes horrible.

My nausea and heartburn have subsided because of the no food but come back with anything I try to eat ( anything including plain rice, plain oatmeal and plain bread). But I still have regurgitation if I try to have anything or even with eating nothing. The pain is normally constant unless I smoke. I recently had a capsule endoscopy which showed gstroparesis (directly opposite the gastric emptying test) but a normal small bowel.I switched to a new dr in New York City whom is the head of the gastric dept in his hospital. He gave me peppermint pills and suggested CBD and ordered a new upper GI to see if my stomach is being pulled by anything. He took me off a lot of meds. I don’t know if the peppermint pills work but at least when I burp or regurgitate my throat tastes like peppermint.

I can’t keep living my life like this. My memory is shot to hell from the weed or the constant pain, take your choice. I own my own business and can barely function. I become unable to do anything or respond sometimes when the pain consumes all my thoughts.

From the lack of eating my energy is starting to diminish, I am getting migraines if I wait too long to eat something and I am starting to have a rash on my face. My sex drive however has increased. I have been getting lightheaded when I stand suddenly and the rest of my body is starting to ache more. I am trying to not go to the hospital. I don’t believe they will do anything aside from make sure I am stable and send me home to follow up with dr. Anyone have anything?

As a small aside- two days ago I ate a small amount and took a pull from my marijuana pen. As I stood up I let out the smoke and my vision got very clouded, my ears started ringing loudly and I began to sway. I felt like I was almost loosing consciousness. I grabbed my table and chair and held on. After 10-15 seconds my vision and hearing began to clear. This has not happened since and scared me deeply.

Any input welcome. Thank you!

Jump to this post

There is no common occurrence. It just happens. The most recent has been more painful.

REPLY
@ritaself

I am hoping to find some help. For years now I have had flare ups (for lack of better terms) that begin with spontaneous vomiting. I can be fine then will have to throw up. Soon after I have pain in my left side just under my rib cage. Spent a week in the hospital a year ago and left with no diagnosis. Comes and goes. No specific food seems to cause it.
I have a history of diverticulitis and years ago was diagnosed with Crones but that diagnosis was incorrect. Had to go to the ER twice in 2 days with nausea and severe cramping. The pain now has started to spread to my rib cage.
I have no insurance and CT scans and blood work show nothing other than a slightly high white count.
Last year they found a touch of gastritis.
I do have an a uerysm on my celiac artery but know my symptoms are unrelated.
I can’t afford a colonoscopy with no insurance and currently am unemployed but cannot get any type of assistance. I am a 60 year old female.
Any help would be greatly appreciated.

Jump to this post

HI, @ritaself - I've merged your post into this discussion of abdominal pain, nausea and vomiting, so that you could speak to others who are talking about a similar issue. Click VIEW & REPLY to see the discussion and scroll through past messages.

While we are not medical professionals and cannot provide a diagnosis, I trust that members here who have experienced these types of symptoms will have some insights for you and provide some support.

When you have experienced these flareups beginning with the vomiting, have you noted anything about what has precipitated the incidents - what you were doing, what you ate, medication you took, etc.?

REPLY
@joshk

Hi all. Trying to find others who maybe have had a similar experience and figured out what’s wrong or how to deal. I have been have severe abdominal pain for months. A lot of the pain originates in the upper right quadrant of my stomach, right below the rib cage. I do have pain on the left upper quadrant and sometimes in the center (heart is fine). Also I have nausea with vomiting, regurgitation, heartburn throughout the stomach and cramps. My symptoms have been getting worse and worse and no diagnosis is on the horizon.

I am a 32 yr old male I had the lap band in 2007. I began to have stomach issues in 2016 and was basically in the fetal position for 3 weeks from intense stomach pain. ER and multiple drs couldn’t figure it out but the pain eventually went away and drs couldn’t figure it out and said come back if pain comes back. Few months later I began to have some discomfort and heartburn and pain. Thought it was the lap band. Had lap band removed March 2018 but nothing was wrong except the port was turned a bit. Had a harder time with recovery from band with pain in the middle of my stomach, next to one of my scars where the port used to be.

Heartburn started to affect me greatly after the band removal and started seeing GI. I was having some abdominal pain, with a lot of heartburn regardless of what I ate. Dr Put me on Carafate and omneprazol and told I have reflux. He also did a gastric emptying test which showed I have dumping syndrome.

The pain in my abdomen started growing in my upper right quadrant with sharp acute pain. Sometimes it felt like someone was twisting my insides, sometimes feels like a hot poker being stabbed into my stomach and other times like my stomach is being squeezed in a vice. I changed drs. Had an endoscopy , which showed grade B ulcers in esophagus with gastritis but no hpylori or Barrett’s. my symptoms started to get progressively worse and dr wanted to schedule capsule endoscopy but insurance wouldn’t pay until colonoscopy was performed. Had colonoscopy which was normal. As I was talking to dr after colonoscopy I was in tears to dr to schedule next test quickly because pain was becoming unbearable. I did not accept any pain medications from drs and instead use marijuana for the pain. Had a ultrasound a few months ago which showed 21cm fatty liver non alcoholic. I had a CT scan which showed prior infection damage to my small bowel. Every time I would look down or bend over I would get very nauseous with vomiting and My wife just gave birth in August so I look down a lot.

Very shortly after my colonoscopy I started to become unable to finish a meal. Food started to loose tase and eventually I stopped eating altogether. This was Around December 23. Since then I have lost 30 lbs. I am maybe able to push down 500 or so calories a day. Usually only after I smoke a lot of marijuana and even then I usually only have a few bites. I don’t feel hungry at all, even after smoking. It feels like my stomach/abdomen is always clenched and shut. If I do suddenly feel hungry if I grab something and try to eat I loose the sensation immediately and in mid chew the food tastes horrible.

My nausea and heartburn have subsided because of the no food but come back with anything I try to eat ( anything including plain rice, plain oatmeal and plain bread). But I still have regurgitation if I try to have anything or even with eating nothing. The pain is normally constant unless I smoke. I recently had a capsule endoscopy which showed gstroparesis (directly opposite the gastric emptying test) but a normal small bowel.I switched to a new dr in New York City whom is the head of the gastric dept in his hospital. He gave me peppermint pills and suggested CBD and ordered a new upper GI to see if my stomach is being pulled by anything. He took me off a lot of meds. I don’t know if the peppermint pills work but at least when I burp or regurgitate my throat tastes like peppermint.

I can’t keep living my life like this. My memory is shot to hell from the weed or the constant pain, take your choice. I own my own business and can barely function. I become unable to do anything or respond sometimes when the pain consumes all my thoughts.

From the lack of eating my energy is starting to diminish, I am getting migraines if I wait too long to eat something and I am starting to have a rash on my face. My sex drive however has increased. I have been getting lightheaded when I stand suddenly and the rest of my body is starting to ache more. I am trying to not go to the hospital. I don’t believe they will do anything aside from make sure I am stable and send me home to follow up with dr. Anyone have anything?

As a small aside- two days ago I ate a small amount and took a pull from my marijuana pen. As I stood up I let out the smoke and my vision got very clouded, my ears started ringing loudly and I began to sway. I felt like I was almost loosing consciousness. I grabbed my table and chair and held on. After 10-15 seconds my vision and hearing began to clear. This has not happened since and scared me deeply.

Any input welcome. Thank you!

Jump to this post

I am hoping to find some help. For years now I have had flare ups (for lack of better terms) that begin with spontaneous vomiting. I can be fine then will have to throw up. Soon after I have pain in my left side just under my rib cage. Spent a week in the hospital a year ago and left with no diagnosis. Comes and goes. No specific food seems to cause it.
I have a history of diverticulitis and years ago was diagnosed with Crones but that diagnosis was incorrect. Had to go to the ER twice in 2 days with nausea and severe cramping. The pain now has started to spread to my rib cage.
I have no insurance and CT scans and blood work show nothing other than a slightly high white count.
Last year they found a touch of gastritis.
I do have an a uerysm on my celiac artery but know my symptoms are unrelated.
I can’t afford a colonoscopy with no insurance and currently am unemployed but cannot get any type of assistance. I am a 60 year old female.
Any help would be greatly appreciated.

REPLY
@joshk

My prior GI mentioned autonomic dysfunction and was supposed to call me back the next day. Called me a week and a half later after I found a new GI and he didn’t think the emptying test and the capsule endoscopy actually showed too mush slowing or speeding up.

I have not heard of MALS but will look it up. I have seen some threads here with it mentioned.

I am definitely looking for out of the box thinking. My new GI made sure to mention there are many “mystery” illness in regards to the abdomen.

Jump to this post

@joshk, I’m not sure if it is an option for you but if it is, the Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. I believe this is because the different areas in Mayo Clinic work together to diagnose and treat the patient. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: https://www.mayoclinic.org/appointments

REPLY
@joshk

Hi all. Trying to find others who maybe have had a similar experience and figured out what’s wrong or how to deal. I have been have severe abdominal pain for months. A lot of the pain originates in the upper right quadrant of my stomach, right below the rib cage. I do have pain on the left upper quadrant and sometimes in the center (heart is fine). Also I have nausea with vomiting, regurgitation, heartburn throughout the stomach and cramps. My symptoms have been getting worse and worse and no diagnosis is on the horizon.

I am a 32 yr old male I had the lap band in 2007. I began to have stomach issues in 2016 and was basically in the fetal position for 3 weeks from intense stomach pain. ER and multiple drs couldn’t figure it out but the pain eventually went away and drs couldn’t figure it out and said come back if pain comes back. Few months later I began to have some discomfort and heartburn and pain. Thought it was the lap band. Had lap band removed March 2018 but nothing was wrong except the port was turned a bit. Had a harder time with recovery from band with pain in the middle of my stomach, next to one of my scars where the port used to be.

Heartburn started to affect me greatly after the band removal and started seeing GI. I was having some abdominal pain, with a lot of heartburn regardless of what I ate. Dr Put me on Carafate and omneprazol and told I have reflux. He also did a gastric emptying test which showed I have dumping syndrome.

The pain in my abdomen started growing in my upper right quadrant with sharp acute pain. Sometimes it felt like someone was twisting my insides, sometimes feels like a hot poker being stabbed into my stomach and other times like my stomach is being squeezed in a vice. I changed drs. Had an endoscopy , which showed grade B ulcers in esophagus with gastritis but no hpylori or Barrett’s. my symptoms started to get progressively worse and dr wanted to schedule capsule endoscopy but insurance wouldn’t pay until colonoscopy was performed. Had colonoscopy which was normal. As I was talking to dr after colonoscopy I was in tears to dr to schedule next test quickly because pain was becoming unbearable. I did not accept any pain medications from drs and instead use marijuana for the pain. Had a ultrasound a few months ago which showed 21cm fatty liver non alcoholic. I had a CT scan which showed prior infection damage to my small bowel. Every time I would look down or bend over I would get very nauseous with vomiting and My wife just gave birth in August so I look down a lot.

Very shortly after my colonoscopy I started to become unable to finish a meal. Food started to loose tase and eventually I stopped eating altogether. This was Around December 23. Since then I have lost 30 lbs. I am maybe able to push down 500 or so calories a day. Usually only after I smoke a lot of marijuana and even then I usually only have a few bites. I don’t feel hungry at all, even after smoking. It feels like my stomach/abdomen is always clenched and shut. If I do suddenly feel hungry if I grab something and try to eat I loose the sensation immediately and in mid chew the food tastes horrible.

My nausea and heartburn have subsided because of the no food but come back with anything I try to eat ( anything including plain rice, plain oatmeal and plain bread). But I still have regurgitation if I try to have anything or even with eating nothing. The pain is normally constant unless I smoke. I recently had a capsule endoscopy which showed gstroparesis (directly opposite the gastric emptying test) but a normal small bowel.I switched to a new dr in New York City whom is the head of the gastric dept in his hospital. He gave me peppermint pills and suggested CBD and ordered a new upper GI to see if my stomach is being pulled by anything. He took me off a lot of meds. I don’t know if the peppermint pills work but at least when I burp or regurgitate my throat tastes like peppermint.

I can’t keep living my life like this. My memory is shot to hell from the weed or the constant pain, take your choice. I own my own business and can barely function. I become unable to do anything or respond sometimes when the pain consumes all my thoughts.

From the lack of eating my energy is starting to diminish, I am getting migraines if I wait too long to eat something and I am starting to have a rash on my face. My sex drive however has increased. I have been getting lightheaded when I stand suddenly and the rest of my body is starting to ache more. I am trying to not go to the hospital. I don’t believe they will do anything aside from make sure I am stable and send me home to follow up with dr. Anyone have anything?

As a small aside- two days ago I ate a small amount and took a pull from my marijuana pen. As I stood up I let out the smoke and my vision got very clouded, my ears started ringing loudly and I began to sway. I felt like I was almost loosing consciousness. I grabbed my table and chair and held on. After 10-15 seconds my vision and hearing began to clear. This has not happened since and scared me deeply.

Any input welcome. Thank you!

Jump to this post

Hello Joshk, i 'am new here, i just registered myself, i had h-pylori and now peptic ulcer, i have taken for 14 days 14 antibiotics a day and the next 14 days 2 a day, after i had finish the antibiotics i went for an endoscopy, and i was told i have peptic ulcer, i am still waiting for the biopsy result, now for one month i am taking twice a day losec 20mg, i am having same problem as you, pain, heartburn, nausea, not wanting to eat i have lost 15 pounds most likely even more some days i don't have any strength, like this morning, force yourself to eat, i also went to buy probiotic i take 3 times a day, digest enzymes, 3 times a day, and peppermint gel, and i am also taking multivitamins, vitamin d3, and vitamin c very important, and since you have lost all that weight i would ask the doctor if he can test you for B12 that's what i am going to do too, i hope that you feel better, force yourself to eat...take care

REPLY
@aljinma

Just FYI, autonomic dysfunction, generally, covers a broad spectrum of possible ways in which symptoms may manifest. The intermittent rapid emptying and then gastroparesis is one possible way. It results from a larger problem in that your body is not appropriately responding to “normal” stimuli. The thing that actually made me ask you was your mention of dizzy spells and inability to concentrate. When our autonomic system isn’t working, our body will start sending itself all sorts of signals that are inappropriate. Have you heard of POTS? It is a form of autonomic dysfunction. Vasovagal syncope or vasovagal disorder is another form where your blood pressure will drop. Basically, your autonomic nervous system takes care of all of that “stuff” we do automatically. In this case, when we stand up, the vessels in our lower extremities should contract to ease the burden of the added gravity on our heart, making it easy to continue to pump blood to your brain without your heart working any harder. If our autonomic system fails to do this, blood pools in your legs, you’ll start to feel dizzy like you’re going to faint, because your body is desperate to get you to lie down and make it easier to get oxygen (blood) to your brain. Also, in an attempt to get your vessels to constrict in other ways, you may release adrenal or neurotransmitters almost like a fight or flight type situation.

Anyway, I’m sure this is overly technical and boring but my point is a GI doc is not who you need to make this diagnosis. You need an autonomic specialist if you can see one. Where are you located?

One other GI question, unrelated to my previous ones... Has anyone mentioned adhesions to you? If you’ve had several operations, this is a distinct possibility and is known to cause extreme pain. Depending on the location of the adhesion(s) it certainly could make digestion difficult and potentially dangerous so if you don’t know this answer, I’d ask your GI doc ASAP. This one is totally their wheelhouse.

Let me know if you have any questions. I’ve been there. It is tough and so frustrating when you don’t have answers but you came to a good place to ask and hopefully we can help you get the answers you need. It always seems like it will never happen, until it does. Hang in there!

Jump to this post

Hello @aljinma

While your post was quite technical, I found it very interesting. You mentioned about finding a doctor who is an autonomic specialist. What type of doctor would this be? Perhaps a neurologist or something else?

REPLY
Please sign in or register to post a reply.