@gabbys24 A primary care doctor may not have much knowledge about TOS, so if that is the case, you might want to request to see a neurologist. I was told it was rare by an orthopedic shoulder specialist who kept telling me I didn't have it. I told him a neurologist diagnosed it several years earlier. Finally after I had by hands turn blue and cold at an appointment (because of my neck position), a doppler test he ordered demonstrated my circulation was diminished by changing my arm position, and he couldn't explain that, he finally accepted the previous diagnosis of TOS, but didn't understand how to rehab it. A neurologist told me that TOS is glossed over in medical school and is often misunderstood. It's actually fairly common and can be caused by a whiplash, or repetitive stress injury. Physical therapists who treat it understand, and may be able to direct you to a doctor with knowledge of it. There are several different types of TOS, and multiple compression points that can contribute to it, and physical build even plays a role. A person with a long neck is more at risk (according to my doctor) because the collar bones are attached lower on the spine which makes the space under them smaller where everything has to pass through. The specialist I saw for this was a thoracic vascular surgeon who also diagnosed it. I had TOS and was in therapy for it when I developed a spine problem. I had overlapping pain symptoms from TOS and cervical spinal stenosis that was generating pain all over my body which made the correlation of my symptoms and my imaging a bit confusing. That's why I came to Mayo because the doctors who saw me couldn't figure it out. Likewise, TOS has overlapping symptoms with carpal tunnel syndrome, and my TOS diagnosis was missed at the time I had carpal tunnel surgery that did not resolve the issues completely. I did also have some big stabbing chest pains right after my spine neck surgery that started as a muscle spasm in my neck and moved down into my chest. Of course, right after surgery there is a lot of trauma and swelling to the area, and the surgical incision was very close to where the TOS problem is. Prior to spine surgery, there were times that my neck position initiated a painful muscle spasm into my chest, and massage and myofascial release was able to dissipate it within minutes.