Forteo vs. Tymlos: Which did you choose?

Posted by suze317 @suze317, Oct 17, 2018

I have to make a decision on Forteo vs. Tymlos and am not sure what to choose. Forteo has been around a lot longer, but has to be refrigerated. Tymlos only around 1 1/2 years but is shelf stable and seems to have less side effects and less issues with calcium. Can anyone offer their perspective? Thank you!

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How much would the chiropractic route cost? Remember..... it’s your health long term. My husband always tells me.... “having you healthy is more important than $$ to go on vacations, a new car or a bigger house.”

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@curlylocks

First, I would like to thank Justin for telling me about this group. Hi Suze317, With the guidance of my new primary care doctor, I chose Tymlos. It is less expensive and, as you know, there is the convenience of not refrigerating the drug. Although Forteo has been around longer, it was explained to me by the Wake Forest Baptist Fracture Division, that the chemical makeup of both drugs is quite similar. Also, Forteo is a 24 mo. drug vs. 18 mo. on Tymlos. Unfortunately, both drugs are toxic! However, both my primary doctor and Wake said one fall and I won't recover. They believe I don't have a choice. My chiropractor preferred I take bone supplements, magnetic treatment and bi-monthly iv drips. The latter was not covered by insurance. While a much healthier alternative, sadly, our government doesn't believe in covering anything that is not traditional meds. I hope this info helps!

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@curlylocks I just checked the cost of Tymlos and on my Medicare D it will be @645 a month, then the donut hole, then less money. Are you on Medicare, and if so is that about what you pay?
JK

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@laurapearl

hi all: i had contributed to this thread in the past, and i thought i would update you. i began tymlos almost a year ago after having done prolia injections for three years. in other words, i had 6 twice-yearly injections of prolia (with improvements in bone density), and at that point, my doctor advised a switch to another medication due to the brittle bone potential that prolia can pose with prolonged use. i had had no side effects with prolia, but with tymlos, i had pretty much all of them. i had the racing heart, headache, and nausea with each and every injection. last week, my dexa scan showed that the bone density in my spine had increased by 14.4% over the ten-month period -- i actually crossed back over the line into osteopenia again. it's a relief. i watched my grandmother spend the last years of her life permanently doubled over as her vertebrae collapsed. sending best wishes to everyone with their treatment.

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@laurapearl I'm glad that after all of those side-effects the drug at least improved your bones somewhat. I am thinking seriously that may be the drug I choose.
JK

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I've added boron to my daily supplementation. Talked with the wife of the creator of Hakala Borotabs. She said her husband was one of the first compounding pharmacists in Colorado. I've read and seen youtube videos on how countries who have large amounts of boron in soil/water have the lowest osteoporosis in the world. Makes sense! I'm taking 30mg/day now and will up to eventually at least 90 mg/day.

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What brand are you taking?

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@contentandwell

@curlylocks I just checked the cost of Tymlos and on my Medicare D it will be @645 a month, then the donut hole, then less money. Are you on Medicare, and if so is that about what you pay?
JK

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Mentor, I applied to Tymlos to help me with the cost of the drug. They have sent me 2 pens. I am waiting to hear if I qualify for pens this year. At first, I was rejected. After writing an "appeals" letter, I received the first pens. Hoping they will accept me for 2020. The forms were given to me by Wake Forest Baptist Medical Ctr. I am currently under their care. Has your doctor told you about this program?

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@curlylocks

What brand are you taking?

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Brand of boron? I am taking the Hakala brand.

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@curlylocks

Mentor, I applied to Tymlos to help me with the cost of the drug. They have sent me 2 pens. I am waiting to hear if I qualify for pens this year. At first, I was rejected. After writing an "appeals" letter, I received the first pens. Hoping they will accept me for 2020. The forms were given to me by Wake Forest Baptist Medical Ctr. I am currently under their care. Has your doctor told you about this program?

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@curlylocks Thank you, but I doubt I would fit the criteria for that program. I’m in that vast middle, not affluent but too much money to qualify for assistance. The good thing is that you only have to take this drug for a year and a half.
I plan to ask my endo if Tymlos would be indicated for me.
JK

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PLEASE DO NOT FOLLOW YOUR CHIROPRACTOR'S ADVICE! He/she should be reported to your state's medical board. Magnetic treatments? How is that supposed to help your bone health? Take the details of this utterly dangerous advice to a regular medical professional--D.O. M.D., Nurse Practioner and see what they might think about it!. You are really risking great physical harm to yourself if you follow this plan. It sounds like your chiropractor is more interested in raising his/her bank account balance than is actually helping with your problem.

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@curlylocks

First, I would like to thank Justin for telling me about this group. Hi Suze317, With the guidance of my new primary care doctor, I chose Tymlos. It is less expensive and, as you know, there is the convenience of not refrigerating the drug. Although Forteo has been around longer, it was explained to me by the Wake Forest Baptist Fracture Division, that the chemical makeup of both drugs is quite similar. Also, Forteo is a 24 mo. drug vs. 18 mo. on Tymlos. Unfortunately, both drugs are toxic! However, both my primary doctor and Wake said one fall and I won't recover. They believe I don't have a choice. My chiropractor preferred I take bone supplements, magnetic treatment and bi-monthly iv drips. The latter was not covered by insurance. While a much healthier alternative, sadly, our government doesn't believe in covering anything that is not traditional meds. I hope this info helps!

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I don't understand how any phramacist would tell you hat "Tymlo couldn't be broken in half beause it's not marked"? It's not a pill, it's an injectable onlly. It's also not 80 mg (milligrams) daily but 80 mcg (micrograms), a different measurement. There would be no way to give yourself half an injection twice a day--why would you want to do that, anyway? The inection process takes about two minutes to prepare your injection site and do the injection, which you really can feel. The needle is very, very tiny. If you are a person who is generally afraid of needles once you've done the Tymlos injection once or twice you won't give it another thought!

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