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@cireland

I am afraid of the Reclast -- have read so many reports of bad reactions. Women over 65 are more prone to the side affects; I am 80. I'm also concerned about the necrosis of the jaw -- I've had many dental problems and am concerned I might be more susceptible. Not sure what I'm going to do after the Tymlos -- looking into Chinese herbs and/or a Naturapath -- but I have several more months on Tymlos.

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Replies to "I am afraid of the Reclast -- have read so many reports of bad reactions. Women..."

Hi.. i saw a rheumatologist a couple years ago. She was giving me a hard sell on Forteo
And told me zero about the risks. And she assumed I was going to take it. To the point that when I was leaving and passed by the reception desk the 2 women working there had already arranged for me to get it at some kind of a mail order pharmacy.. where it was obvious the doctor had a connection. The so called pharmacy kept calling me.. saying it was really easy for them to mail it to me. And how I didn't have to pay up front. I never even ageed to take it.???!!! And I read up on it later. And was surely not wanting to have jaw necrosis. So I didn't go back to that doctor.

When I first read about Reclast 8 years ago I didn’t think I would ever try it - I also read many negative reports. When I went over the plan with my new endocrinologist I got the actual facts and numbers. I believe that jaw necrosis is typically seen in people who had cancer and as a consequence of the chemo causing massive bone loss their doses of the bisphosphonates are much higher than most receive. I studied it on more sites and found a lot of people took it with little reaction - just like the Tymlos. I would research more while on the Tymlos. Risk to everything, including doing nothing. Best of luck to you. I love alternative medicine solutions as well! Good for us all to share and have more choices than in the past.

Please, please forget the Chinese herbs! Depend on a good endocrinologist
for modern, knowledgeable care for your possibly very life-altering
disorder (and not in a good way!).

Good evening @cireland and @kdbones, you two have mentioned the big question: What will we do after Tymlos? I am in month 7 with no side effects or reasons to stop the injections at this time. What I like best about Tymlos is that you take this medication one day at a time. I have had a batch of reactions to the once a month dosages that have side effects for which there is nothing you can do. Please share your experiences and findings so that more of our fellow members on Connect may benefit. Be safe and protected. Chris