Forteo vs. Tymlos: Which did you choose?
I have to make a decision on Forteo vs. Tymlos and am not sure what to choose. Forteo has been around a lot longer, but has to be refrigerated. Tymlos only around 1 1/2 years but is shelf stable and seems to have less side effects and less issues with calcium. Can anyone offer their perspective? Thank you!
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@artscaping Thanks, Chris. I just wondered the approximate cost if this is what I am prescribed. I presume that the other drugs are priced similarly.
The cost of drugs is ridiculous. As I said, I was paying more than that for xifaxan. When I was using xifaxan the full price was about $2400 a month, our cost @$700 a month. I had a brand new bottle of the pills when I got my transplant. I wanted to send them to someone I got to know online who needed them but my husband was very concerned about the legality of it so they were disposed of. Lactulose is cheap and I had almost a case of it but the whole case was only about $60.
JK
Good article! The “pop-ups” are a bit distracting, but the information was helpful.
Sadly, suing a company or any “entity” almost always has the cards stacked against the claimant. For the few stories that get published about some cheater making false claims and getting some huge payout, I think there are hundreds (or thousands) of people who should receive compensation, but get nothing. The state of Virginia really stacks the deck against people who get injured and try to sue for negligence. The interpretation is that if the claimant has any responsibility whatsoever for the injury (... you should have been paying more attention and not tripped over that big crack in the sidewalk, or that pool of soapy water on the floor, etc., etc.), then the claimant gets nothing. It’s crazy.
I hear the same about TN. I certainly understand there’s a lot of insurance fraud and many of the regulations and laws are made as a deterrent to those fraudulent claims. However, it is very sad for those of us who actually have a real claim. Ty
I am a 64 y/o female with osteoporosis and have been on Tymlos for 8 months now. I had a few days in the beginning of headaches and racing heart rate. I take it at bedtime, no more side effects and easy to administer. My rheumatologist says Tymlos is only to be taken for 18 months. He says he will check my bone density 2 years from my last scan. He wants to start me on something else when I am done, like prolia. I thought I would be done after the Tymlos so I am not happy about that! I've heard of many bad side effects from Prolia. I am also taking 1200 mg of calcium daily and 2,000 units daily of Vitamin D, those I am supposed to take forever. Anyone else done with their Tymlos and having to take other medications now?
I am just completing my 10th month on Tymlos. I've had very little reaction. Similar to you at the beginning, but very slight, nothing that made me feel nervous or that I wanted to quit. I too was told, and all the research I've read supports, it needs to be followed up with something because you start losing the bone you built up. It's not like a bisphosphonate or prolia that stays in your body for a while. I am going to follow up with a 6 month iv dose of reclast. i didn't want the full dose in order to minimize any reaction. I may then do a second 6 months and then nothing for some years.
I am afraid of the Reclast -- have read so many reports of bad reactions. Women over 65 are more prone to the side affects; I am 80. I'm also concerned about the necrosis of the jaw -- I've had many dental problems and am concerned I might be more susceptible. Not sure what I'm going to do after the Tymlos -- looking into Chinese herbs and/or a Naturapath -- but I have several more months on Tymlos.
Hi.. i saw a rheumatologist a couple years ago. She was giving me a hard sell on Forteo
And told me zero about the risks. And she assumed I was going to take it. To the point that when I was leaving and passed by the reception desk the 2 women working there had already arranged for me to get it at some kind of a mail order pharmacy.. where it was obvious the doctor had a connection. The so called pharmacy kept calling me.. saying it was really easy for them to mail it to me. And how I didn't have to pay up front. I never even ageed to take it.???!!! And I read up on it later. And was surely not wanting to have jaw necrosis. So I didn't go back to that doctor.
When I first read about Reclast 8 years ago I didn’t think I would ever try it - I also read many negative reports. When I went over the plan with my new endocrinologist I got the actual facts and numbers. I believe that jaw necrosis is typically seen in people who had cancer and as a consequence of the chemo causing massive bone loss their doses of the bisphosphonates are much higher than most receive. I studied it on more sites and found a lot of people took it with little reaction - just like the Tymlos. I would research more while on the Tymlos. Risk to everything, including doing nothing. Best of luck to you. I love alternative medicine solutions as well! Good for us all to share and have more choices than in the past.
Please, please forget the Chinese herbs! Depend on a good endocrinologist
for modern, knowledgeable care for your possibly very life-altering
disorder (and not in a good way!).