Forteo vs. Tymlos: Which did you choose?

Posted by suze317 @suze317, Oct 17, 2018

I have to make a decision on Forteo vs. Tymlos and am not sure what to choose. Forteo has been around a lot longer, but has to be refrigerated. Tymlos only around 1 1/2 years but is shelf stable and seems to have less side effects and less issues with calcium. Can anyone offer their perspective? Thank you!

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@artscaping

@contentandwell, Yes I have the drug part or Medicare D which is then farmed out to another carrier. Since the Tymlos hasn' been a whole year....I can't fill in all the gaps.

Initially, I paid about $550 a month in the summer. Then it went down in the coverage gap. Then it went down further in the last two months. I picked up 3 prescriptions ...2 very pricey ones and gabapentin last Friday. The total was $90 so I am pretty sure that the Tymlos was about $50.

My advisor said I need to stay with the same carrier and that financially it will be about the same as last year. Is there something you want to know specifically? I am not good at this stuff at all. I can barely understand all the ins and outs of the plans. That is why I have an insurance advisor who keeps me "covered" pretty well. Have a restful sleep. Chris

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@artscaping Thanks, Chris. I just wondered the approximate cost if this is what I am prescribed. I presume that the other drugs are priced similarly.
The cost of drugs is ridiculous. As I said, I was paying more than that for xifaxan. When I was using xifaxan the full price was about $2400 a month, our cost @$700 a month. I had a brand new bottle of the pills when I got my transplant. I wanted to send them to someone I got to know online who needed them but my husband was very concerned about the legality of it so they were disposed of. Lactulose is cheap and I had almost a case of it but the whole case was only about $60.
JK

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@contentandwell

@starkl @migizii @butch24350 I am in such a similar position. I thought I was doing great, exercising a lot and feeling good. Then I fell from a pre-syncope episode, fractured my “greater trochanter of L femur” (hip) and have been in pain ever since and worried about a fall, particularly with winter almost here, with its icy parking lots.
I can still be independent and have resumed exercise, painfully. I was told I cannot make anything worse so I can do what I can tolerate, the fracture is not a weight-bearing area.
I had been planning to start/resume doing yoga (I had done some in the past) but that’s out now, it’s too difficult to get down and back up from the floor.

This article came in my email this morning about osteoporosis medications. I have found “everydayhealth” to be a fairly reliable source for information and I think there are not too many sources for objective appraisals of medicines.
https://www.everydayhealth.com/news/osteoporosis-drugs-safe-dangerous/?slot=0&xid=nl_EHNLwomenshealth_2019-11-09_18569130&utm_source=Newsletters&nl_key=nl_womens_health&utm_content=2019-11-09&utm_campaign=Womens_Health&utm_term=creativeA
JK

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Good article! The “pop-ups” are a bit distracting, but the information was helpful.

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@butch24350

Well which person should I have sued? I do have a suit against the outdoor shopping area where the walk was broken.But Tennessee has a very stringent test for how bad the sidewalk has to be broken and or what level of negligence occurred to allow the sidewalk to be in disrepair. Now, they will try to get out of it because of the second break. All I know is it’s been over a year, I was fine when I walked to the restaurant, had never fallen in my adult life and they’re still fighting just paying my medical bills ...let alone all the pain and suffering from the broken femur, cracked hip and pelvis and the IM Nailing exchange surgery. I was an independent 3-5 mile a day walker and now I am lucky to go to the store alone! It’s such an ugly business of blaming the victim! In fact the manager of the mall inadvertently told the intern my attorney sent
( he thought it was his insurance company rep) to take pictures, that my two friends and I were drinking in the bar in the corner for three hours and we were drunk. I don’t drink, we had been in town less than 2 hours and I had 3 conversations with the office staff at our resort just 30 minutes prior to the fall....Fully sober! Thanks for letting me vent!

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Sadly, suing a company or any “entity” almost always has the cards stacked against the claimant. For the few stories that get published about some cheater making false claims and getting some huge payout, I think there are hundreds (or thousands) of people who should receive compensation, but get nothing. The state of Virginia really stacks the deck against people who get injured and try to sue for negligence. The interpretation is that if the claimant has any responsibility whatsoever for the injury (... you should have been paying more attention and not tripped over that big crack in the sidewalk, or that pool of soapy water on the floor, etc., etc.), then the claimant gets nothing. It’s crazy.

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@jmanj

Sadly, suing a company or any “entity” almost always has the cards stacked against the claimant. For the few stories that get published about some cheater making false claims and getting some huge payout, I think there are hundreds (or thousands) of people who should receive compensation, but get nothing. The state of Virginia really stacks the deck against people who get injured and try to sue for negligence. The interpretation is that if the claimant has any responsibility whatsoever for the injury (... you should have been paying more attention and not tripped over that big crack in the sidewalk, or that pool of soapy water on the floor, etc., etc.), then the claimant gets nothing. It’s crazy.

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I hear the same about TN. I certainly understand there’s a lot of insurance fraud and many of the regulations and laws are made as a deterrent to those fraudulent claims. However, it is very sad for those of us who actually have a real claim. Ty

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I am a 64 y/o female with osteoporosis and have been on Tymlos for 8 months now. I had a few days in the beginning of headaches and racing heart rate. I take it at bedtime, no more side effects and easy to administer. My rheumatologist says Tymlos is only to be taken for 18 months. He says he will check my bone density 2 years from my last scan. He wants to start me on something else when I am done, like prolia. I thought I would be done after the Tymlos so I am not happy about that! I've heard of many bad side effects from Prolia. I am also taking 1200 mg of calcium daily and 2,000 units daily of Vitamin D, those I am supposed to take forever. Anyone else done with their Tymlos and having to take other medications now?

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I am just completing my 10th month on Tymlos. I've had very little reaction. Similar to you at the beginning, but very slight, nothing that made me feel nervous or that I wanted to quit. I too was told, and all the research I've read supports, it needs to be followed up with something because you start losing the bone you built up. It's not like a bisphosphonate or prolia that stays in your body for a while. I am going to follow up with a 6 month iv dose of reclast. i didn't want the full dose in order to minimize any reaction. I may then do a second 6 months and then nothing for some years.

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@kdbones

I am just completing my 10th month on Tymlos. I've had very little reaction. Similar to you at the beginning, but very slight, nothing that made me feel nervous or that I wanted to quit. I too was told, and all the research I've read supports, it needs to be followed up with something because you start losing the bone you built up. It's not like a bisphosphonate or prolia that stays in your body for a while. I am going to follow up with a 6 month iv dose of reclast. i didn't want the full dose in order to minimize any reaction. I may then do a second 6 months and then nothing for some years.

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I am afraid of the Reclast -- have read so many reports of bad reactions. Women over 65 are more prone to the side affects; I am 80. I'm also concerned about the necrosis of the jaw -- I've had many dental problems and am concerned I might be more susceptible. Not sure what I'm going to do after the Tymlos -- looking into Chinese herbs and/or a Naturapath -- but I have several more months on Tymlos.

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@cireland

I am afraid of the Reclast -- have read so many reports of bad reactions. Women over 65 are more prone to the side affects; I am 80. I'm also concerned about the necrosis of the jaw -- I've had many dental problems and am concerned I might be more susceptible. Not sure what I'm going to do after the Tymlos -- looking into Chinese herbs and/or a Naturapath -- but I have several more months on Tymlos.

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Hi.. i saw a rheumatologist a couple years ago. She was giving me a hard sell on Forteo
And told me zero about the risks. And she assumed I was going to take it. To the point that when I was leaving and passed by the reception desk the 2 women working there had already arranged for me to get it at some kind of a mail order pharmacy.. where it was obvious the doctor had a connection. The so called pharmacy kept calling me.. saying it was really easy for them to mail it to me. And how I didn't have to pay up front. I never even ageed to take it.???!!! And I read up on it later. And was surely not wanting to have jaw necrosis. So I didn't go back to that doctor.

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@cireland

I am afraid of the Reclast -- have read so many reports of bad reactions. Women over 65 are more prone to the side affects; I am 80. I'm also concerned about the necrosis of the jaw -- I've had many dental problems and am concerned I might be more susceptible. Not sure what I'm going to do after the Tymlos -- looking into Chinese herbs and/or a Naturapath -- but I have several more months on Tymlos.

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When I first read about Reclast 8 years ago I didn’t think I would ever try it - I also read many negative reports. When I went over the plan with my new endocrinologist I got the actual facts and numbers. I believe that jaw necrosis is typically seen in people who had cancer and as a consequence of the chemo causing massive bone loss their doses of the bisphosphonates are much higher than most receive. I studied it on more sites and found a lot of people took it with little reaction - just like the Tymlos. I would research more while on the Tymlos. Risk to everything, including doing nothing. Best of luck to you. I love alternative medicine solutions as well! Good for us all to share and have more choices than in the past.

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@cireland

I am afraid of the Reclast -- have read so many reports of bad reactions. Women over 65 are more prone to the side affects; I am 80. I'm also concerned about the necrosis of the jaw -- I've had many dental problems and am concerned I might be more susceptible. Not sure what I'm going to do after the Tymlos -- looking into Chinese herbs and/or a Naturapath -- but I have several more months on Tymlos.

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Please, please forget the Chinese herbs! Depend on a good endocrinologist
for modern, knowledgeable care for your possibly very life-altering
disorder (and not in a good way!).

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