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Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: Mar 19 10:00am | Replies (626)

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@cake

I don't have the vagina, urethra pain. Just sit bone pain, butt crack pain, and bottom of sacrum and buttocks pain. Not sure what I have.

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Replies to "I don't have the vagina, urethra pain. Just sit bone pain, butt crack pain, and bottom..."

Sounds like pudendal neuropathy ! I have it

Wow, that’s how my pudendal neuralgia started. Burning, stabbing pain in my rectum/tailbone pain. That was in 2013. I suffered with this condition Until 2018 when I heard of the pain clinic in Mankato, MN. Had nerve blocks that didn’t do anything, then put on Duloxetine. That helped along with sitting on a Kabooti cushion. Those were a life saver back then. Pain eventually got worse and I my doctor recommended a Nevro spine stimulator. Worked wonders at that time. But in 2024 the pain began migrating to my vagina (felt like a bad yeast infection at first). My skin started getting pins and needles stinging from the back of my buttocks (even tailbone pain) to my labia skin. then the pain started inside my vagina. After reading about Pudendal neuralgia I confirmed my own symptoms and those of PN were exactly the same. I had adjustments made on my stimulator to target the pudendal nerve and it has really helped. I usually have no pain right when I get up, but it slowly progresses throughout the day depending on how much bending/lifting and housework I do. I can’t work anymore (since 2013 I can’t sit for more than a couple hours with special cushion to sit on). My pain gets bad by 3 pm, so I use my stimulator on pulsation phase and I feel it. It confuses my the nerve /brain because all you feel when s the pulse not the pain. It is a life saver for me. I lay down to rest as well. That helps. I have had chronic constipation since I was 17 yrs old and that is one of the symptoms that can lead to pudendal neuralgia. I live day by day with this. Hope this helps.