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Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: Feb 13 8:28pm | Replies (547)

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@vklittle61

Thank u so much for this information! I recently had to quit my job because of pudendal nerve entrapment I just got my diagnosis about 3 months ago! I sit on ice packs every day when I sit down in order to be able to sit down I have to have ice packs. I have a cushion that I believe is more for someone with tailbone pain. I have been unable to find a cushion that I am comfortable with that is made for someone with pudendal nerve entrapment. I have not been given any type of painkillers I have been given gabapentin. It may or may not be helping me. As I said I’m not working now because I just couldn’t do it anymore. I also have pain in my feet on both sides on the inside of both heels and Going up and into between my legs so sometimes I sleep with ice packs between my legs to freeze the pain and make it stop. So if you have any insight on my next move or what I should do should I have hope should I try this pump that you’ve tried.? What type of Quetion do you sit on I’m curious? Have you done any injections have you done pelvic floor physical therapy? And did that work for you if so?

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Replies to "Thank u so much for this information! I recently had to quit my job because of..."

I find it awkward speaking to the ladies when I can only make suggestions from man’s side. I had rectal repair surgery back in 2006. I was suppose to “ cure my pain” and repair the tear. Repair the tear worked the pain part didn’t. What the surgery did was damage the nerves permanently an cause peripheral damage to my feet all at once. I won’t go into all the lies I was told by that surgeon and all the doctors I saw after. Just criminal the way I was treated. It took 3 and 1/2 years before I found what really happened. The only pain med I was prescribed was the Fentynal patch. Really a bad idea as I found out later. I was on that patch from 2011 until 2016 when I had a pancreatitis attack. I found out later that the use of that patch caused that problem. Because everyone’s ignorance on what Fentynal can do to body and how bad a drug it was, in my case it stopped my pancreas from working. I started starving to death. The only reason I mentioned this is it took a year of starvation and the help a nurse advocate to find a good gastroenterologist who helped me find the cause. From what I can tell you don’t need addictions problems. I do understand your situation. Sitting, standing, laying down, eating while standing, finding something to sit on for more than five minutes, trying to stay alive, I still live with all this. What I found out, and this happens is a medical problem called Central Sensitization Syndrome. A very real medical problem that a lot of doctors are not aware of. You might want to look into this. As with a lot of this chronic pain problems it turns out there is real very little doctors can help us with. They just don’t know enough about that very complicated subject and all they are trained to do is handout very dangerous pharmaceutical drugs. As for me and I am not a doctor nor someone who thinks it is wise to give out medical advice, this is how I deal with my excruciating pain. I do use ice packs for the first onslaught of pain. Then I use a heating pad for a couple of days. I had to make my own custom cushion to sit on. A lot of experimenting on that one. I did find a very good neurologist in California. He is located in San Gabriel a clinic call California Headache and pain center. I get sterile injections. Mine last a long time probably longer than than most people. Right now mine last for 11 months pretty much pain free. I still can’t sit for more than 30 minutes as it starts to become uncomfortable, but it is better than nothing. The reason my injection lasts longer is because of this Central Sensitization Syndrome. One of things about this is I became chemically sensitive. That is about the only helpful about this medical problem. The injections last longer. One the bad things about this problem is you become hypersensitivie to pain. Really hypersensitive! In my case , my entire central nervous system has become hypersensitive. This also only happens to someone rarely. Lucky me. I don’t know how much you know about the practice of practice of meditation. I use this. It is very difficult to use this when you are in pain, very distracting, but has some benefits. This might seem strange to you but exercise is very important. I have been into exercise since I was very young so I have a lot of experience in that field. I am 71 now. If you haven’t done any you would need to start out very slowly and carefully. Having to find someone who understands your age and what kinds of exercises are right for you is very important. From what I have seen there are very few people I would trust who understands this. Be very cautious about who you go to for help. You are the best judge of what you can do and your pain level, no one else is. I have spent a lot of wasted time going to the wrong people for help. I know you are looking for even some relief but in reality you might be just as stuck in hell as I am now. There is no magic cure right now no matter what anyone tells you. You are just going to have to face that fact for right now. I read about as much as I can take in on this and I see researchers trying to find answers all the time. That is still not helping you and me right now. I just try to find a level of comfort and peace. Stress of any kind makes pain worse. They work hand and hand to make our lives worse without having medical problems. If you have found anything I have said helpful try it. None of what I have said will cause you more pain.