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DiscussionPudendal Nerve Entrapment/Neuropathy/Damage
Chronic Pain | Last Active: Oct 29 9:41am | Replies (592)Comment receiving replies
Thank you for this reply and these thoughtful ideas. This is my reality now. I have become way to unnatural. I have developed chemical sensitivity and Central Sensitization Syndrome has affected all my senses. When dealing with my nerve damage, I was prescribed Fentynal. I was put on the patch. This was the only pain killer I was ever prescribed. I was never told what Fentynal was and was to blinded by the excruciating pain I was in to ask. Dumb I know! If I had known I would never have used it. I was never an addict but I have known people who were. Some were friends of mine. They all died. I started in 2011 and didn’t stop until 2017. I only used 25 mg. I was constantly encouraged by doctors to use a higher dosage but I was already chemically sensitive and I didn’t know it. In November of 2016 I had a pancreatitis attack and nearly died. I never had a problem with my pancreas before. As usual, the doctors there couldn’t find anything wrong with my pancreas and sent me home with this dumb reason, some times this happens and now your OK. I wasn’t. I started starving to death. No matter how much I ate I kept loosing weight. I saw too many doctors and they did the same useless tests over and over. I lost 40 lbs and I normally weighed around 188. The other problem was they thought I was starving myself. Before I finally was referred to a very good gastroenterologist, I decided to look into this myself as I couldn’t trust these people anymore. It took me about an half an hour on the computer to find my medical problem. I was only using two medications at that time. Thyroid med an Fentynal. Thyroid med would not affect me this way but when I looked into that crap Fentynal that could. Where were my doctors brains? This new gastroenterologist agreed with me. I also started seeing a new pain specialist who told me more about Fentynal. He doesn’t use any opiates in his practice. You might guess by now I no longer trusted doctors and I wanted off Fentynal. I detoxed at home with some help from these new doctors. This is when chemical sensitivity hit me. I was prescribed two drugs to help me. I tried using just one pill and it screwed me up real bad. So I had to detox with no help at all. Within 4 days of detox, my pancreas started working. I stopped loosing weight. The gastroenterologist put me on what is called a map diet. There is a high side and a low side, and both sides are all natural foods. I can’t eat anything from that high side without causing me to have an allergic reaction. I can eat everything on the low side without a problem. I can no longer drink herbal teas or herbs or spices. I can no longer use any pharmaceutical drugs not even an aspirin. That leaves me with very little options for pain relief. I get injections. Because I have chemical sensitivity, the injections last me a longer time than in most people. My senses can be a a real pain. If I am the least bit stressed, which I am all the time, well I don’t think I need to explain that. My doctors are at the point of understanding that there is very little they can do for me now. There are no answers or treatments that really help. I am constantly trying to keep updated with anything that some researcher might come up with but I am a realist. I am 71. I don’t have the finances or the ability to go more than twenty miles in one direction. I can’t get on a plane. One of the weird things is, most people who see me would never guess I have any of this. I walk twice a day with my dog for about an hour. I have peripheral nerve damage in both my feet. I exercise 7 days a week. I eat good natural foods and have gained back my weight an muscle. Then there is my reality. I am in constant pain all the time. The injection wares off about, like right now. About 7 months for the surgical area and without a warning, the pain hits all at once. My wife is use to this and all she can do is watch me scream in agony. I have learned to use hot and cold compresses to relieve some of that. Here is another reality for me. I can’t go to a emergency room for help. They can’t help me.
Replies to "Thank you for this reply and these thoughtful ideas. This is my reality now. I have..."
It sounds like you're living in hell... I am so sorry for you. I understand totally your pain... Sometimes I just lay in bed and cry. Narcotics help me for break through pain but no one wants to prescribe them... I find that so unacceptable when we are suffering so much!!! I go home to the UK every year and the journey is a nightmare... This forum is helping me just in the fact that people understand... I never even heard of this until this year. My doctor misdiagnosed me with an STD!!! So for 5 years I went on with my life feeling dirty as well as in agony. I actually told my doctor what my diagnosis was!!! Amazing that I pay $150 for a 10 minute appointment and I'm the one who had to research my pain....
What do you take for pain?