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mandiPNE (@mandee)

Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: Jun 18 4:08pm | Replies (448)

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@bkruppa I'm sorry to hear about there being so much pain. Yes, nerves can promote swelling. They can also affect vascular supply to areas, too. However, swelling can also be from poor venous or poor lymphatic return (and even that can be affected by nerves or for other reasons).

It is quite possible that your wife's pain is actually generated by the areas above the pain as "referred pain" (and tension) can travel far. One thing to consider is self massage with a Rollga roller (there is both a Pro and a soft Rollga model). These are curved foam rollers (rather than flat ones) and are a little easier to work with than rolling on massage balls in case you think some of the pain is from myofascial (muscular) tension compressing the nerve. These work well all over the body including legs, glutes, upper back, etc. They helped me get rid of tight IT bands and other areas of tightness I had in my legs and glutes. They are sold on Amazon and there are instructional videos on the web (youtube; you just don't roll on the lower back as that can trigger spasms). That way you can do self massage regularly rather than relying on massage therapists. You can vary how much pressure there is if you use these – so massage can be gentle or aggressive and you can also dwell on an area of tension to get rid of "trigger points". One thing too – the therapist I'm working with for the injury massage I get (described in my prior posts) mentioned his opinion after 28 years – if pain changes with time it probably is not structural (i.e. not bones and ligaments). For instance, my lower back pain comes and goes – but since I started doing TRX suspension core workouts and certain stretches I haven't had a back ache since Christmas. Which leads me to think my back pain is muscular. I'm still trying to get rid of some sitting pain – that causes tension near the tuberosities for me. Ultimately, a pinched nerve somewhere (somewhere in the lumbosacral region) is probably causing that. Also, stretching and whatever movement that is tolerated sometimes helps (walking, recumbent bike, ellipticals, etc., if able). Good luck. If massage helps, I would recommend the Rollga.

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Replies to "@bkruppa I'm sorry to hear about there being so much pain. Yes, nerves can promote swelling...."

@mandee @bkruppa @sdswoboda53 @richman54660 I have no experience with Pundental nerve issues, but wanted to pass along some information that I found that might help about Myofascial Release therapy. There is a lot of information you can find at myofascialrelease.com and treating this condition is on the list. I do MFR with my physical therapist for thoracic outlet syndrome and with recovery from spine surgery and it has helped me a lot. It is a slow process and you have to work through layers, but it restores proper alignment and movement and corrects bad posture that contributes to so many problems. MFR often works where conventional therapies have failed by treating a physical problem.
Lumbo Sacral Decompression video with John Barnes

Have you ever had an MRI of your pelvic area with contrast to see if you have any other conditions such as arachnoiditis? I did and found out but I had this terrible condition caused by injections and surgery and doctors will not tell you about it.

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