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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: Feb 22 1:06pm | Replies (294)Comment receiving replies
Thank you so much for sharing with me what's going on with you. I had pain in my stomach and I was anemic so a Ct scan was done. My spleen was enlarged so I was sent to see an Oncologist. He ran a JAK 2 blood test and he said if it came back negative that he would do a bone marrow biopsy. It came back negative so he did the biopsy and it showed SMZL. This is so new to me and because it's so rare, I feel alone with it. I'm not sure I like my Oncologist either so that doesn't help.
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@caroldk I also am JAK2 negative & CD20 negative. Please don't feel alone there are a lot of great people here that you can always communicate with. As far as for SMZL it is slow growing and people live a good and long life with it. As for Mayo I can't recommend it enough. I am been to Rochester 3 times in the past two years and it has always been a great experience. Best wishes for you.
Steve