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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (329)Comment receiving replies
@caroldk I also have SMZL I was diagnosed in April of 2017 at Mayo Rochester. In July 2017 I had my spleen removed at Mayo. I went back home, then in September 2017 I had another bone marrow biopsy that showed that I still had lymphoma in the marrow. So I went on 4 weeks of Rituxan. I have the same problems as you do with fatigue, random pain in joints and muscles. My temps can range by up to 3 degrees from morning to night. If you have any questions just ask. If you don't mind sharing how did you receive the diagnoses of SMZL? Good luck to you.
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Thank you so much for sharing with me what's going on with you. I had pain in my stomach and I was anemic so a Ct scan was done. My spleen was enlarged so I was sent to see an Oncologist. He ran a JAK 2 blood test and he said if it came back negative that he would do a bone marrow biopsy. It came back negative so he did the biopsy and it showed SMZL. This is so new to me and because it's so rare, I feel alone with it. I'm not sure I like my Oncologist either so that doesn't help.