@caroldk are you able to get a second opinion from Mayo Clinic. They have a HUGE building and wing they just built in Jacksonville. Fl. They have all kinds of studies going on specifically geared towards Lymphoma. Can you reach out to them for a consultation? They also have facilities in Phoenix and Rochester, Mn. Maybe one of the Dr's there can help you? Or they have a study you can get in that maybe of benefit to you?

Does soaking in a warm bath help your symptoms at all? Or maybe applying some Ben Gay to the sore spots?

I wish you the best.
Please keep us posted, but do call your DR and see if he can give you some answers and help to alleviate your symptoms.

Praying you get relief..
And I hope you have a Nice Valentine Day..
Jackie