Thar was a great post. I need to send it to my doctors. Here they are clueless. They just tell me you are psychic and depressed. And l went to my rheumatologist and he has more sense then my general practice doctor. They keep trying to give me antidepressants and sedatives and l have to keep telling him about meds l can't take. So he the next one on the chopping block. And they want people to go to doctors???? And when l tell my insurance not to pay them , they say we have to know question asked. Well isn't that something no wonder they want to run all these test and prescribe medicine that makes your HE worst. But we need to hear from more hospitals and doctors who are researching HE. I go to a lot of journal from the UK because they were dealing with this more before but now it seems like everyone is dealing with it. But l.will definitely pass this on because some people don't have a diagnoses.