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Elevated parathyroid hormone (PTH): How is it treated?
Diabetes & Endocrine System | Last Active: Sep 23, 2023 | Replies (150)Comment receiving replies
I have had high PTH and normal Calcium with many, many symptoms and have also been extremely frustrated. I have a referral to Mayo in Rochester and am trying to sort out how to get there and have more testing done. I initially had a PTH level drawn to investigate my symptoms of headache, fatigue, palpitations, etc. and My Calcium was 9.6 with a PTH of 85. My next draw was super odd with a Calcium of 8.8 (not corrrected for Albumin) and a PTH of 109. Then it was all checked again and I had a Vitamin D level of 23. After supplementation it was 29 with a Caclium of 9.5 and a PTH of 76, and then Vitamin D 40, with Calcium 9.4, PTH 76. The Endocrinologist that I have been seeing says that my PTH is now "normal" and that I had secondary HPT, but shouldn't the PTH be much, much lower? My PTH has been tested 5 times and never below 75, but my calcium has never been higher than 9.6. Hoping I can get to Mayo for eval., but I am scared to spend the time and money only to be turned away again! Thanks to everyone for sharing your experiences. It would be nice to hear from more "normal" calcemic patients!
Replies to "I have had high PTH and normal Calcium with many, many symptoms and have also been..."
I have the same - there is something they have been seeing called normocalcemic primary hyperparathyroidism - there is a article on the NIH site about it. I am just starting the process of meeting with an endocrinologist - I don't have elevated Vitamin D or calcium blood levels but I also have hypertension that seems to jump all over the place (and I run an hour a day) - I am wondering if my hypertension is related to my elevated PTH levels.
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Hello @megansims
I can understand your confusion. My PTH levels and calcium levels have also been up and down. My endocrinologist is on the staff at a large university medical center and she is quite good. She has diagnosed me with hyperparathyroidism even though the levels are inconsistent. I would encourage you to visit Mayo or another research-oriented, multi-disciplinary health center where you can be evaluated.
Do you have any other health problems of significance? Please share only as you are comfortable doing so.