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I too have elevated PTH but my calcium levels are normal. Apparently this is called normocalcemic hyperparathyroidism. My primary care doc is an endocrinologist and after a bone density test showed that my bones were losing density (despite doing a lot of weight bearing exercise), he wanted to do the blood test and the 24 hour urine catch which showed the elevated (but not scary) PTH and normal calcium. That was at the end of November and I'm to have a retest early February. A parathyroidectomy may be in my future. I've been scouring the internet to find info about hyperparathyroidism and surgery seems not unusual, even with normal calcium. BTW my D3 is normal.

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Replies to "I too have elevated PTH but my calcium levels are normal. Apparently this is called normocalcemic..."

Hello @crankyyankee

I would like to welcome you to Mayo Connect. I found your story about normocalcemic hyperparathyroidism to be very interesting as it parallels a lot of my problems with elevated PTH, (sometimes) elevated calcium levels (sometimes) and continual low bone mass despite treatment with meds. My D3 is below normal and just doesn't go up no matter how much Vit D3 supplements that I take.

While I had never heard of normocalcemic hyperparathyroidism, I did a little investigation online and found this information from the National Institute of Health. I found it very interesting and I thought that you would as well. Here is the link, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3564219/.

This seems to be a relatively new diagnosis in that it does not fit the primary hyperparathyroidism.

I would certainly be interested in hearing how you are following up on this matter. Will you post again?

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