← Return to Severe eye pain and visual disturbances no one can diagnose

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@rosemarya

aaron, I am in total support for getting a second opinion. This includes talking with your doctor about your new information, as well as follow thru with your John Hopkins plans.
I do have a question(s) for you - You mentioned University of Louisville -(good place, I've been there for other reasons)- Is this the reason you were admitted there? Was there any follow-up scheduled? Have the inpatient/out patient doctors compared the notes regarding any other medical conditions that might be involved?
You are young, and as a mother, I want you to be assured that it is OK to ask questions and to seek 2nd and even 3rd opinions. You are the one who will benefit and you must be proactive and advocate for yourself. You do not need to do it alone, though - Is there a friend or family member who can support you and be with you as you go forward.
I am here, as are others to support you and to be available anytime.
What are your thoughts about this?

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Replies to "aaron, I am in total support for getting a second opinion. This includes talking with your..."

I told them I was getting worse it seemed weekly at first the neuro opthalmologist said come back if it gets any worse and I told him that and he scheduled me for three months. My neurologist had found something that was rare and he told me to tell the neuro opthalmologist about it and his reply was I’ve never heard of it. Which doesn’t mean it doesn’t exist. Treated me pretty much like I had a hangnail or something. The neurologists in the hospital were nice and compassionate just did not know what to do. I’m Praying the lady that mentioned about my neck could be on to something I’ve had neck problems many times before this all started and called a chiropractor and physical therapist and they said it is possible for your neck to cause problems like this. I just never would have dreamed but I’m not very smart medically and everything seemed like it was neurological or coming from my head. Which I guess is possible since all your nerves travel through your spine in your central nervous system