aaron, I am in total support for getting a second opinion. This includes talking with your doctor about your new information, as well as follow thru with your John Hopkins plans.
I do have a question(s) for you - You mentioned University of Louisville -(good place, I've been there for other reasons)- Is this the reason you were admitted there? Was there any follow-up scheduled? Have the inpatient/out patient doctors compared the notes regarding any other medical conditions that might be involved?
You are young, and as a mother, I want you to be assured that it is OK to ask questions and to seek 2nd and even 3rd opinions. You are the one who will benefit and you must be proactive and advocate for yourself. You do not need to do it alone, though - Is there a friend or family member who can support you and be with you as you go forward.
I am here, as are others to support you and to be available anytime.
What are your thoughts about this?