@czechmate
So it does appear like you have been evaluated in lots of areas of specialty.

When I originally had MS like symptoms I was told that they might not be able to find out what was wrong until it got worse. That did not make me feel very happy but in time a diagnosis of Parkinson's did become obvious. It was a tough wait for me but it finally did work out.

If you live near a medical center that has a multidisciplinary team approach, like Mayo, or a university medical school, you could give that a try. Do you have any other thoughts?