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Side Effects of Shingles Vaccine

Just Want to Talk | Last Active: Nov 4 9:56am | Replies (141)

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@carolandersonl

On 11/14/2020, I received the first dose of the Shingrix vaccine. I was very tired for 3 days. Immediately after that, it felt like the floor or ground was severely rocking under me when I walked or stood. It felt like trying to walk on a boat in a storm. After two weeks, I had a tele-med visit with a nurse practitioner who said it might be crystals in the inner ear. It continues, but is less severe. Have been mostly housebound, I’ve also had headaches. I read that shingles can cause ear infection or nerve damage, Even now, Dec 12, I sometimes veer to the side when walking, I asked the pharmacist about this ( he gave the injection, did not advise about fatigue ) but he quickly said it was definitely not related to Shingrix. 1. Is there a possible connection? 2. Should I risk the second Shingrix vaccination? I’m loathe to have further damage.

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Replies to "On 11/14/2020, I received the first dose of the Shingrix vaccine. I was very tired for..."

Hello Carol, and welcome to Mayo Connect.
We are a community of people with a wide variety of conditions and challenges who share our experiences in hopes of helping each other to live as fully as possible. We are not medical professionals and don not provide diagnoses, but we do share what has worked for us.

Since your NP suggested you may have misplaced crystal in the inner ear, did she suggest any home treatments you could try to relieve the dizziness? Misplaced crystals may give rise to a condition called Benign Paroxysmal Positi0nal Vertigo (BPPV) and there are a variety of exercises you can try to get relief. This article from Johns Hopkins gives a good description of the condition and the most usual therapy to treat it, called the Epley Maneuver:
https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/home-epley-maneuver
This is only a guess, but resting for longer hours due to fatigue after the vaccine could have caused crystals to shift in your ear. My episodes of BPPV tend to occur during/after an illness or after spending multiple days in a moving vehicle. I have used the Epley Manuever and others I found on You Tube successfully, sometimes if the dizziness is severe it can take up to 5 sessions to get relief. If this doesn't help, you can call your NP again for more advice.

Sue

Hi Carol @carolandersonl welcome. May I suggest vestibular therapy since the ARNP suggested your health issue may be related to the crystals in the inner ear. I agree with Sue. Try the exercises offered through youtube. For my balance issue I had received physical therapy to try the Epley Maneuver. I first received an order for physical therapy to help me with my balance issues through my PCP. I chose the physical therapy group but you can also your physician for a recommendation in your area.
Here is a link from the CDC regarding the Shingrix vaccine. Hope it helps to make your decision for the second dose. Call them if need be. Toni
https://www.cdc.gov/vaccines/hcp/vis/vis-statements/shingles-recombinant.html

I never had Shingles but had the 1st shot of the GSK Vaccine in March 2020 per the recommendation of my internist since I had “ chicken pox as child. What a mistake.
I had a horrible reaction and it is now January 2021 and I am still suffering. My internist told me under no circumstance get the second dose .
I contacted the CDC and reported my reaction on a voicemail (2x) a week apart and have to laugh at the representative that eventually responded (month later).
I had completed a form on line within a day of my reactions .
The CDC person’s response was limited to parroting back to me what I had submitted on the form a month prior.
I did get a “Lawyer Letter”- release - from GSK asking me to give GSK access to all my medical records a few weeks after that. I decided not to agree.
There has been no further contact from GSK or CDC.
I have continue to experience severe peripheral neuropathy, chills, “goose bumps” , extensive itching on both my arms from my shoulders down my arms to the back of my hands and regular numbness in the fingers on both my hands. A similar reaction is occurring on both my legs from knees to my feet , extreme itching
( ankles and top off both my feet).
So intense is that reaction that I have cut my finger nails to the point comparable to a “nail biter” . The result of scratching in my sleep to the point causing injuries.
I have tried various prescription skin creams containing steroids which reduced the itching however resulted in my skin becoming paper thin which I had to discontinue.

I have also been advised by my internist NOT to take the COVID vaccine.
I have done my own research with no input from CDC or GSK.
I am not optimistic that the alleged time frames for these horrible reactions to cease are accurate. I have changed my diet, eliminated
all potential “trigger foods/beverage”.

Getting the GSK Shingrex vaccine was one of the biggest mistakes of life.

On November 30, 2021, I got the first Shingrix vaccination. A few days later, I noticed that the bathroom floor was giving under me (like the floor boards were not strong). Then over the next several weeks, I realized that I was having the same sensation in other rooms, even outdoors on concrete sometimes, and in parking garages. Floors that should have been totally stable were not. From the very beginning, I talked to others about it, including my doctors, but no one seemd to know what to think, except that it seemed to be some kind of vertigo.
I researched and found references to “rocking dizziness” and “mal de debarquement.” I found Dizziness and Balance.com (the Chicago Dizziness and Hearing Center. I was reassured by my understanding from them that this condition does eventually go away, although it may take a long time.
I went to the University of Washington Neurology Clinic, who had no idea what I had and referred me to the UW Otology Clinic, who eventually gave me four hours of exams, with the conclusion that they could not find labyrinthitis or anything else.
Over time, I notice the sensation less, but I do still notice it at times, especially under stress.
I have not gotten the second dose of Shingrix.
About a week ago, Googling “Shingrix vertigo” I discovered this chat line and the 2020 entry by @carolandersonl.
JohnCahall

It is related. I also had vertigo after getting the vaccine. Seemed like I was on a slow carousel. I'm sure GSK doesn't want to list that as one of the possible side effects. I'm also wondering if I should get the second one.