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Anyone from Canada?

MAC & Bronchiectasis | Last Active: May 20 9:37am | Replies (55)

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@colleenyoung

Hi @amn17, welcome to the MAC group on Connect. Allow me to introduce you to fellow Canadians who are also members of the Connect MAC group. Please meet @lauriefrancis @megan123 @nick52 @teresaml @mariposa @joanney and @tessie.

Amn, we look forward to getting to know more about you. Do you have MAC, MAI, bronchiectasis? Do you see a specialist? How are you doing?

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Replies to "Hi @amn17, welcome to the MAC group on Connect. Allow me to introduce you to fellow..."

Hi @colleenyoung thanks for your reply. I have MAC and was diagnosed 2 years ago. I am seeing lung specialists and I'm on treatment... had repeated hemoptysis due to a cavity so waiting for lobectomy surgery... Do you know any doctors who specilaze in NTM in Canada? Thank you.

I’m from just outside edmonton. Seeing dr cooper at the u if a. He is amazing.
Was diagnosed 10 years ago. On my third round of the three cocktails of antibiotics. Temp went on inhalation. Amakacin. Had some issues with that so went off everything a bit. And just recently back on the 3.
Never had issues with the 3 prior. But lots this round. Not sure if my body is just tired of them.
Also of advanced BE. Seems like the two go together?
Tired of being tired.
Have a doodle. So walk him and golf on weekends. But that’s a bit exhausting now.
Is this as good as it gets now ?
Anyone else on round 3 or 4?