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Chemo side effects

Blood Cancers & Disorders | Last Active: Oct 8, 2018 | Replies (10)

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@1nan

I spent months o both of these drugs. Excessive fatigue was compounded by anemia. Medication managed epigastric symptoms. I had loss of taste. Side effectsxare different for everyone. Revlimid caused such persistent anemia and need for transfusions that it was ultimately discotinue. But not before my numbers improved significantly. As often happens, Velcade eventually stopped doing what we wanted and I began Darzalex combination. After morecthan two years, I am in rmission. Worth it? Absolutely. I have redefined what life looks like as my normal and all is good. Fatigue persists, as does other parts of this journey. But I make plans for every day, and live life differently. Just know that you can learn to manage symptoms as you begin to understand them.

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Replies to "I spent months o both of these drugs. Excessive fatigue was compounded by anemia. Medication managed..."

Good for you!!! You are right...it is definitely "worth it" to go through the induction therapy and get to that "new normal". I was diagnosed with multiple myeloma in Dec 2012, SCT in Sep 2013. Have been in a clinical trial since before the SCT (0702). My maintenance medication on the study has been Revlimid only and am currently taking 5 mg daily. I understand the "new normal" of the side effects of this drug and you are right, I am fortunate to be managing them pretty well. I am new to Phoenix and new to the Mayo Clinic Cancer Center. I am blessed to be here and look forward to getting more involved with the Cancer Center and volunteering once I am settled.