← Return to trigeminal neuralgia and Parkinson's diagnosis

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@numbskull

@hopeful33250 Hi Teresa,

Yes, I have been to 3 neurologist this past year. The most recent being a movement disorder specialist. I Googled “Trigeminal Neuralgia and Parkinson's Disease” because I wanted to know if they are related in some way. At the top of the google list came “Parkinson’s disease: an inquiry into the etiology and treatment” https://www.ncbi.nlm.nih.gov/pubmed/22053261

I asked this question to my neurologist, Could it be helpful to investigate the link between Parkinson's Disease and Trigeminal Neuralgia?

The response was, That is an interesting observation you make but as a clinical neurologist, I do not do research. An academic institution might be a great place to pursue this (like University of Michigan).

My symptoms are Tremor and cogwheel rigidity on right side of body, Parkinson's. Trigeminal Neuralgia is a constant numb burning pain with intermittent shooting pains into mostly left side of face and eyes. I have a feeling like I am wearing a party hat with the elastic under my chin and going up the sides of my face. I also get crushing pain from muscle spasms in my head and neck. I've had vertigo several times a month. Head rushes happen when the barometric pressure changes coming with so much pain that I can't even lay my head down, I have to sleep sitting up. It would be nice the find a doctor that has experience in treating someone with these 2 conditions.

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Replies to "@hopeful33250 Hi Teresa, Yes, I have been to 3 neurologist this past year. The most recent..."

@numbskull Hello Sharon

It sounds like you have been hard at work to find an answer. I certainly appreciate your proactive approach.

If you care to share more, what meds are you currently taking to control the PD symptoms? What type of exercise programs do you practice on a daily/weekly basis to decrease rigidity and increase range of motion?

Also, you mentioned in your last post about going to a research hospital to look into this, such as Univ. of Michigan. Have you made an appointment there yet?

Hello, @numbskull - how are things going with your Parkinson's and also the trigeminal neuralgia?