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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 9 9:21am | Replies (224)Comment receiving replies
The GOL House was very, very nice. After discussing the future with her CAR-T doctor and nurse practitioner, when she is released from the hospital, she will go to an inpatient care facility for physical and occupational therapy, and most likely home after that, not returning to the GOL. As as result of that discussion, I decided to return to our home 45 miles from Rochester and leave the GOL. Because of the pandemic and inability to be with her, I decided I can face time her from home as well as from the GOL house. And if, by some miracle, I can get to see her in person, I can be there in less than an hour. And it is quite possible she may be released to the Mayo facility in our town. At least. that's what they are working toward. Thanks for asking. Would I recommend GOL to others? As we say in Minnesota, "Ya, you betcha!"
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Thank you for the update. Is your wife needing additional care due to speech and motor impairments? Do they forsee a full recovery? Thank you on the advice to start a journal, that is a great idea. I really hope your wife makes a full recovery, even if the road may be longer than anticipated, the reward will hopefully be worth the struggle.
I agree, the Gift of Life house is a blessing. We were here with mom's stem cell and now for CAR-T. It's comforting to have familiarity when we are far from home.
We are both very scared for tomorrow(infusion day), I have to be prepared I understand. She has had every chemotherapy regimen for DHL. So we are not starting off strong to begin with.
Thank you for being a glimpse in the future for us. I truly wish the best for you and your wife.