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Anyone have tips on sun protection?

Transplants | Last Active: May 8, 2022 | Replies (115)

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@contentandwell

@sallycurrier Looking back over your posts I see that you have had a kidney transplant so do you now need another or are you moving and need to find a transplant center for your continued care? My response is formed on the assumption that you are in need of a transplant again but you can use the same resources to find a transplant center for continuing care.

When I discovered that I needed a liver transplant I googled to find the transplant centers close to me. You can also find them by going to the SRTR.org site. SRTR is the Scientific Registry of Transplant Recipients. It lists data about all of the hospitals that do transplants for each type of transplant.

When I was diagnosed with cirrhosis my PCP suggested I go to one transplant center. I had a consultation there and neither my husband nor I cared for the doctor we dealt with - she was like a little Nazi, very abrupt and dictatorial. We both knew she was not who we wanted to be dealing with for the long haul so I did some research using the methods I mention, plus other rating sites, and chose to go to Mass General in Boston which turned out to be an excellent decision, they were wonderful and still are. They are rated the second-best hospital in the country, next to Mayo in MN, so I knew I would not go wrong there.

At MGH (Mass General) you start out being seen by a hepatologist. When your MELD is high enough to qualify you for a transplant you spend a day meeting with representatives from all different specialties that you will be seeing for tests, plus the financial people and someone from the psychiatry area -- some people have depression before and/or after transplant.

Sunscreens were discussed here also. You sure live in an area where they are necessary every day. I generally use moisturizers or foundations that have an SPF and also a hand cream that has one -- your hands are exposed a lot, particularly if you are driving. The thing I do most though is simply to avoid the sun. Although living in New England, most of the year I don't have the blazing sun that you have I do have a very light complexion and have gotten some very severe sunburns in the past, really when I was much younger so I am fairly careful.
JK

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Replies to "@sallycurrier Looking back over your posts I see that you have had a kidney transplant so..."

Thanks for your reply.
Fortunately I do NOT need a new transplant, only someone to follow the one I’ve had for 18/years.
I’ve always had ‘A Team’ follow me at UCSD where I got my kidney. Moving to AZ I miss that and do not even have a Nephrologist yet. It’s scary to “just pick” one...