@lch713 I know how that is. I was misdiagnosed with COPD and bacterial pneumonia for about 30 years also. And TB. and ...... on and on. Every organ failing, but pulmonologist radiologist said I did not have COPD but did have a lot of other stuff. Any, after some study and testing, I have some form of Light Chain Amyloidosis, probably Gelsolin or Apolipoprotein or similar. I have a whole list of my symptoms and signs available. https://bit.Ly/1w7j4j8 "Amyloidosis...." Find a doctor you trust, cardi, pulmo..., onco..., hema... doesn't matter much, but they must order the test that Mayo (Dr. Martha Grogan) says, and have someone like ARUP labs or Mayo-Quant labs or Sloan Kettering do the analysis. If they show positive for SERUM protein outside the reference range, or Urinary protein above .5g/24hr, that's a good lead to follow. But you absolutely must have a doctor you can trust with your life, and who will follow directions from Mayo or Stanford, etc. The list of needed tests is also on my Amyloidosis and old karl paper. The testing is paid for by Medicare.