Late dx, only 16% lung function
Just found this group. My husband was diagnosed with MAC 2 years ago. We now suspect he was misdiagnosed with COPD and bouts of pneumonia for years. Looking for others who are managing this disease with similar loss of lung function in hope of finding additional strategies. He's been on the big 3 for 1 year now and sputum cultures are still positive. Began inhaled amikacin 1 month ago after discussion and questioning his ID physician. My heart goes out to all dealing with this disease and their caregivers.