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@kequick

You said it well @nianya, sounds like this is definitely not your first rodeo! Regarding the SRTR data I shared, you’re exactly right – very important to note that those are averages. SRTR does include some detail on waiting averages by blood type, you should find that around page 4 of the Program Summary Report on a given transplant center.

Great point about the 5.5 hour flight. I’m not qualified to make a recommendation around whether or not that would be make sense for your husband’s case – have you consulted with your husband’s care team on the pros/cons of traveling for his transplant?

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Replies to "You said it well @nianya, sounds like this is definitely not your first rodeo! Regarding the..."

Fair enough. . . I don't know that he's spoken specifically with his team about distance and how far is reasonable, just about going out of town in general. I feel confident on OUR end about out ability to pull it off and get there as fast as we can. I'm more concerned about the likelihood of the hospital skipping over us when a kidney comes up because of how far away we are. I've been told by one hospital -- and likely they're all like this -- that that certainly can happen, depending on the situation with that particular kidney. It may be that its viability would be diminished if they waited for someone far away to get there. So, if for example in the Arizona case if it took us 10 hours from the time we got that phone call to get to the hospital, are we significantly lowering our chances of even getting the call to begin with? Can you give me an average of how long the hospital needs the patient there from the time of the call? I wouldn't be harping on this if I wasn't so interested in the Mayo Clinic in Arizona 🙂 (BTW, I've called and spoken to about 25 facilities, so this doesn't come without a good bit of research).