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@calical

Hello everything it's calical! I just wanted to update everyone on what has been going on. So for the past few months I have been tremor and shake free! I stopped having the unexplained tremor like episodes that would leave me debilitated but I've still dealt with other weird symptoms such as slurring, brain fog, head burning sensations and other weird head feelings. My first neurologists thought it was some kind of complex migraine and then my second opinion said it was anxiety which we all know is not the case. I have had to deal with anxiety after going through all of this but I know an anxiety attack wouldn't have put me in a wheelchair for a whole week. My MRI with contrast came back because they saw something on my brain but it was very small and they said it was a cavernoma but it had nothing to do with the symptoms I was dealing with. I am still undiagnosed which is frustrating but seeing as things have gotten better I am able to finally live my life again. Though the thought and fear of what this could be or what if it comes back always lingers, I'm finding a way to not allow it to define my life anymore. I am supposed to have a repeat head MRI this month and I'm hoping to get a full spinal MRI though I feel as if none of the doctors take me as seriously because I am able to walk and talk normally. Such a shame, but I will keep everyone posted on this and I wish the best for everyone and I hope everyone here will find answers as well

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Replies to "Hello everything it's calical! I just wanted to update everyone on what has been going on...."

I'm glad you finally found results! I've never heard of this. Please keep us informed on your progression. I hope everything comes out okay. I have prayed for you and will do it again. You have been through a lot.

@calical
I was wondering if you'd read over the link below and see if it has any correlation in the symptoms you have been having.
https://www.medicalnewstoday.com/articles/319700.
May I ask a couple of questions?
Do you have anxiety or depressive issues? Headaches?
You mention your fully awake and able to communicate then you say you were very out of it. Can you clarify these statements? You mention flailing, was that a feeling or we're they actually moving?
Have you ever lost consciousness or slept after an episode?
Take care,
Jake

Hi, @calical - just wondering if you've had any more of the shakes and brain fog? What were the results of your further MRI(s)? Were you able to get a full spinal MRI, too?