I do have the mutation in ATM too.. All my test - MRI, ultrasound, mammogram are negative. However, I have a pain in my left breast for 3 years, and now for 4 months in my other breast too. I decided to go for double mastectomy as the pain stresses me out so much, and I cannot live every day in fear. My health card covered my surgery and the reconstructive surgery and I m very happy about it. Me and my husband have this ATM gene, therefore my son carry the AT syndrome who we lost 21 years ago when he was almost 18 old. I remember when I was reading some info about my son's AT Syndrome was saying that the mothers have a high risk of getting breast cancer. I was wondering how I can be connected to my son's AT Syndrome. I shared that with my breast specialist doctor and she sent me to a genetic doctor. And at 60 years old I got to know that I have the mutation in ATM gene.
Please, ladies if you have already breast cancer in early stage and the doctor recommended you to have a double mastectomy just go for it....That's the best way to get rid of it.
By the summer I am going to have my surgery and I am very happy about it.
My best wishes to all of you, you are strong ladies and I know that you are going to win in this game. Never give up!!!

Canada