← Return to Antibody Mediated Rejection-Liver, anyone else??

Discussion

Antibody Mediated Rejection-Liver, anyone else??

Transplants | Last Active: Jun 13, 2023 | Replies (18)

Comment receiving replies
@contentandwell

Hi @charicen and let me also extend a late welcome to Connect to you. I had a liver transplant in September, 2016 and I have been very fortunate in having no problems (except some little pesky ones from the darned immunosuppressants) since then. I did not see mention of where you are located or where you had your transplant, but I am surprised that your team has not been more supportive. I had my transplant at Mass General and I cannot say enough good about them, and from what I have heard most transplant departments sound like they are very special in their treatment of patients. You have cirrhosis now, after a transplant? My transplant was due to non-alcoholic cirrhosis and my new liver is doing great. I too had HCC prior to transplant, removed by ablation, but I do go for yearly MRIs to make sure it is not recurring anywhere. It was right on the edge of my liver and when they dissected my liver they discovered there was still a bit of a lesion there. Prednisone caused affected your cartilage? I never realized that was a possible side-effect. I take a very small dosage of it daily.

I love your attitude, I firmly believe that attitude can make a huge difference, that we have to stay positive. Plus, even if having a positive attitude does not help, it at least makes your life more pleasant.

Your coworkers sound great. You are lucky to have such a great group of people to work with.
Keep that sense of humor up and you will overcome.
JK

Jump to this post


Replies to "Hi @charicen and let me also extend a late welcome to Connect to you. I had..."

I live in a small town in northern Minnesota. All of my transplants were done through Mayo in Rochester. The team has been very supportive throughout the years. I just happened to be one of the people that if there is a low percentage of it happening to someone, then that someone is usually me. I don't ever let it get to me. I have my favorites among the staff of the transplant clinics though and try my best to see them on a continuous basis so that I maintain continuity of care since that seems to be the best way to get good results rather than just drawing who happens to be in clinic at the time. Continuity of care is important for patients and especially those that have a more complex case.