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Anyone out there with Erythromelalgia?
Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)Comment receiving replies
Hi @txbren, welcome to Connect.
We've had a few members talk about burning feet and hands, like @jlor and @skullborous.
- Burning Feet syndrome https://connect.mayoclinic.org/discussion/burning-feet-syndrome/
But I'm not sure if they were diagnosed specifically with erythromelalgia (https://rarediseases.org/rare-diseases/erythromelalgia/)
Txbren, do you experience burning in both hands and feet? Can you tell us a bit more about your situation, how long have you experienced erythromelalgia and how it is being managed?
Replies to "Hi @txbren, welcome to Connect. We've had a few members talk about burning feet and hands,..."
My hands sting and burn in heat, but my feet are th worse. I have been diagnosed since April 2018 with Erythromelalgia, and also Peripheral Neuropathy. I am taking Gabapentin and CBD oil, but nothing but “cold” helps!
Gosh, @txbren and @colleenyoung, my feet have burned all mylife. The family doctor told my it was I had frostbite on them when quite young. Now I begin to wonder....Gotta look it up..
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The erythromelalgia started April 24,2018. It is absolutely stopping everything I am able to do, even walking inside, because of the burning heat & pain. I am searching for new medicine, on Gabapentin now and it does nothing, and researching for a successful treatment!