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timing immunosuppressants

Transplants | Last Active: Aug 26, 2018 | Replies (22)

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@contentandwell

I just want to clarify one thing. I should have said in my original posting that I first spoke to my transplant team and told them I would like to start taking them without food. They then checked me, and sure enough my level was higher than need be so they cut me back, two times.

I would never, ever change an important medication like that without checking with my doctor and I would never suggest that anyone should. I tend to be a very cautious person and those who know me, know that about me, but of course my online correspondents do not. I am very much a researcher also. Many people who know me, think I should have had a job that entailed research. Researching was probably what led me to realize that I would be better off taking the medication without food so I could take a lower dose of it. All medications have side-effects so the lowest dose you can take of anything, the better off you are, I believe, but again lowering any dose should only be done after consultation with your doctor. I was able to lower my dose of levothyroxine also, after consulting with my doctor. I had a feeling that my thyroid did not need the dose I was taking and sure enough I was right on that too, and my pill is now cut in half. I was already at the lowest dose pill available. Hopefully this week when I see my endocrinologist I will be able to continue at that low dose, or perhaps stop taking it entirely.
JK

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Replies to "I just want to clarify one thing. I should have said in my original posting that..."

Which meds have been readjusted? Thyroid or anti rejection?

@rosemarya, my thyroid. Levothyroxine is for hypothyroid. As I mentioned, my dose is tiny. Things can affect it though. I was taking biotin and discovered that can make your TSH (thyroid) tests measure higher than they should! I stopped taking it. My transplant told me I could take it because the immunosuppressants were causing my hair to get very thin.
JK