@divineone Just a comment about the rarity of some forms of Amy. Current thinking is that I have Gelsolin of some form, but it may be Evans Syndrome. Gelsolin itself is diagnosed in less than one person per million each year, so that means less than 300 per year in the USA. A few years ago my cardiologist said he had "Hundreds of Gelsolin" patients, and that I did "not look like any of them." About all you can do is keep going and keep searching. Oh, and have a good laugh sometimes at the stupidity we all face. https://bit.Ly/1w7j4j8